Adere is a nice thirteen year old boy who loves to go to school and study. He is in grade six and loves music. He spends his free time listening to country music and also loves to dance with his friends.
His parents are farmers of teff and maize. But their harvest from their farm is very limited because of the hot and dry landscape. The population in the area is mostly supported by the government and NGOs for food and other basic needs. His parents have 12 children. Three of them are dependently living and the rest of the children are supported by their parents.
Adere was born with congenital anomaly called Bladder Exstrophy. The child’s bladder is open to the air and not within the body. He leaks urine directly to his abdomen. As a result, he has bladder exposed to dirt which can cause infections and injury. Adere suffers from pain from irritation of the bladder, infection, and a bad smell from the continuous urinary leakage for the past years.
In his classroom, he sits far from other students in the back alone. He mostly prefers to be alone, psychologically affected by the bad smell. His parents are always very worried and concerned because of his condition. They took him to a clinic in their area when he was a child, and the clinic told them this has to be treated in referral hospital. Their village is very rural that they couldn’t get to a hospital and the parents couldn’t bring him to the capital.
Adere’s brother said, “I believe he will have a normal life, free from any smell and psychological concerns.”