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Josias is a happy and playful three-year-old from Haiti who needs $957 to fund hydrocephalus treatment so he can grow in good health.

Josias
51%
  • $490 raised, $467 to go
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$467
to go
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July 20, 2022

Josias is a three-year-old boy from Haiti. He lives with his parents and older brother. He is a happy and playful toddler who loves to smile and play!

Josias has been diagnosed with hydrocephalus, a condition in which excess cerebrospinal fluid accumulates in the brain and increases intracranial pressure. As a result of his condition, Josias has been experiencing developmental delays. He cannot walk or talk yet. Without treatment, Josias will continue experiencing severe physical and developmental delays.

Our medical partner, Project Medishare, is requesting $957 to cover the cost of surgery for Josias at Hospital Bernard Mevs to treat his hydrocephalus. This is the only site in the country where this care is currently available. The procedure is scheduled to take place on July 20th. This critical treatment will place a shunt to drain the excess fluid from Josias’s brain to reduce intracranial pressure and greatly improve his quality of life. With proper treatment, Josias will hopefully develop into a strong, healthy young boy.

Josias’s family has shared that they hope this surgery will allow him to be more independent.

Josias is a three-year-old boy from Haiti. He lives with his parents and older brother. He is a happy and playful toddler who loves to smile...

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Josias's Timeline

  • July 20, 2022
    PROFILE SUBMITTED

    Josias was submitted by Jennifer Rogers, Chief Nursing Officer at Project Medishare.

  • July 20, 2022
    TREATMENT SCHEDULED

    Josias was scheduled to receive treatment at Hospital Bernard Mevs in Haiti. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • July 20, 2022
    PROFILE PUBLISHED

    Josias's profile was published to start raising funds.

  • TODAY
    AWAITING FUNDING

    Josias is currently raising funds for his treatment.

  • TBD
    AWAITING UPDATE

    Awaiting Josias's treatment update from Project Medishare.

Funded by 26 donors

Funded by 26 donors

Treatment
Hydrocephalus VPS
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $957 for Josias's treatment
Hospital Fees
$357
Medical Staff
$100
Medication
$80
Supplies
$60
Labs
$10
Radiology
$350
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

Families usually notice this condition with their child as their head grows large. These children do not reach normal developmental milestones and become unable to hold their head up, sit on their own, or talk. Some children become very irritable and become unable to suck and swallow so getting enough nutrition becomes difficult.

​What is the impact on patients’ lives of living with these conditions?

Children living with hydrocephaly are living with some form of brain damage that progresses as they get older. This damage will prevent them from developing on a normal trajectory. They have trouble eating, being able to sit, stand and communicate. Often they develop seizures and often experience pain and irritability. If it remains untreated, this condition will lead to death.

What cultural or regional factors affect the treatment of these conditions?

There is a lot of fear and stigma toward these patients as their heads grow large. Families with children who have hydrocephalus have trouble finding caregivers and support because of this fear. Also it is a financial burden to care for these children because of medication for seizures and the extra care they require as they grow older.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The treatment process involves a surgery to stop the extra fluid in the brain from accumulating and putting pressure on the brain. This is done by putting a small tube in the brain that drains the fluid into the abdomen (VP shunt). The patient usually spends one or two nights in the hospital and then goes home with a tiny incision in their head and abdomen.

What is the impact of this treatment on the patient’s life?

This treatment is the only thing that will save the patient’s life. This treatment will prevent further brain damage. If it is caught early it allows the child to grow and develop fully. If it is caught late, the patient can receive therapy to assist them to overcome the developmental difficulties caused by the damage already done to their brain.

What potential side effects or risks come with this treatment?

In some children the shunt that drains the fluid into the abdomen can become blocked or infected. In these cases the shunt is removed, the infection is treated, and the shunt is replaced.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

There is only one hospital in the country that performs surgeries for children with hydrocephaly. This hospital is in Port au Prince, Haiti. Children that live in the North or South of the country have to travel very far for clinic visits and surgery. This requires spending all day or several days on public transport to reach the hospital.

What are the alternatives to this treatment?

There are no current alternatives this treatment. If the brain damage is too far advanced then palliative care to treat the child’s pain and support the family is the only other option.

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Meet another patient you can support

100% of your donation funds life-changing surgery.

San Htay

San Htay is a 44-year-old woman from Thailand. She moved from Burma eight years ago in search of better economic opportunities and lives with her husband and two sons in a village in Thailand. San Htay has an older daughter, who lives nearby with her own family, and San Htay also has three children from a previous marriage who live in Burma with their grandfather. San Htay’s husband and older son work as day laborers and collect firewood and charcoal. She is a homemaker, taking care of the household, looking after her youngest son, and raising the family's chickens. She shared that their overall income is insufficient to cover the family’s daily expenses and healthcare. In October 2022, San Htay began to experience lower back pain and other worrisome symptoms. She visited the hospital in early November, where the doctors conducted an ultrasound and discovered a possible mass at the cervix. She was given iron supplements and pain medication. However, her symptoms have continued to worsen over time, and she is also experiencing headaches, weight loss, and a decreased appetite. As a result, working around the home is difficult for her, and her husband and son often have to leave work to help. This has led to a decrease in their family income, which is adding further stress on San Htay. She shared that she also misses being able to work in her garden to grow many things like cabbage and chilies, but the pain and fatigue make it too challenging. Fortunately, our medical partner, Burma Children Medical Fund (BCMF), can help. The doctors at BCMF’s hospital want San Htay to undergo a CT scan, a procedure in which x-ray images taken from several angles are combined to produce cross-sectional images of the body. This scan will hopefully help doctors diagnose her condition and formulate an appropriate treatment plan. San Htay will undergo this scan on December 8th, and BCMF is requesting $414 to cover the cost of San Htay’s CT scan and care. San Htay said: “At first, I was feeling hopeless, crying a lot, and now that I know there are donors who can help cover the cost of the treatment, I am feeling hopeful again.”

0% funded

0%funded
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