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Success! Benelson from Haiti raised $1,500 to fund prep for cardiac surgery.

Benelson
100%
  • $1,500 raised, $0 to go
$1,500
raised
$0
to go
Fully funded
Benelson's treatment was fully funded on February 1, 2018.

Photo of Benelson post-operation

February 13, 2018

Benelson underwent cardiac surgery.

During surgery, a balloon was inserted into Benelson’s heart and used to stretch his valve open to a near-normal size. He should be able to lead a more normal life with no symptoms from this condition.

His mother says, “I am very thankful to everyone who helped my son have this surgery!”

During surgery, a balloon was inserted into Benelson's heart and used to stretch his valve open to a near-normal size. He should be able to ...

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December 12, 2017

Benelson is a student from Haiti. He lives in a rural area in the mountains of central Haiti with his parents and a large extended family. He is in the eighth grade in school, and enjoys helping his family take care of their animals at home. Benelson has a cardiac condition called severe valvar pulmonic stenosis. One of the four valves in his heart is too small, preventing enough blood from flowing through it and leading to heart failure.

Benelson will fly to Cayman Islands to receive treatment. On December 12, he will undergo cardiac surgery, during which surgeons will insert a catheter with a balloon at the end into his heart, and inflate the balloon to stretch the valve open. Another organization, Have a Heart Cayman, is contributing $14,000 to pay for surgery.

Benelson’s family also needs help to fund the costs of surgery prep. The $1,500 bill covers labs, medicines, and checkup and followup appointments. It also supports passport obtainment and the social workers from our medical partner, Haiti Cardiac Alliance, who will accompany Benelson’s family overseas.

He says, “I am glad I can have this surgery so I won’t be as tired all the time!”

Benelson is a student from Haiti. He lives in a rural area in the mountains of central Haiti with his parents and a large extended family. H...

Read more

Benelson's Timeline

  • December 12, 2017
    PROFILE SUBMITTED

    Benelson was submitted by Owen Robinson, Executive Director at Haiti Cardiac Alliance, our medical partner in Haiti.

  • December 12, 2017
    TREATMENT OCCURRED

    Benelson received treatment at Health City Cayman Islands. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • December 12, 2017
    PROFILE PUBLISHED

    Benelson's profile was published to start raising funds.

  • February 01, 2018
    FULLY FUNDED

    Benelson's treatment was fully funded.

  • February 13, 2018
    TREATMENT UPDATE

    Benelson's treatment was successful. Read the update.

Funded by 19 donors

Funded by 19 donors

Treatment
Overseas Prep and Transportation
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $1,980 for Benelson's treatment
Subsidies fund $480 and Watsi raises the remaining $1,500
Hospital Fees
$0
Medical Staff
$450
Medication
$360
Supplies
$0
Travel
$900
Labs
$180
Other
$90
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

When a hole exists in the heart, a physician can hear a buzzing noise, or murmur, in the child's chest as blood passes through the hole at high velocity. The child's parents might notice that their son or daughter cannot keep up with other children in daily activities. In severe cases, the lack of oxygen in the bloodstream can lead to dramatic symptoms, such as blue lips and tongue, clubbed fingers and toes, and heart failure. The patients treated by Haiti Cardiac Alliance tend to fall into two categories. They are either born with some type of hole or defect in the heart, or they develop valve disease as a result of an untreated strep throat infection (rheumatic fever). Patients with rheumatic valve disease experience swelling of the abdomen and extremities, as the heart tries to circulate blood through the body despite the valve's dysfunction.

​What is the impact on patients’ lives of living with these conditions?

Virtually all of the conditions treated at Haiti Cardiac Alliance will eventually lead to death without surgery, the majority of them within one to two years. In the meantime, patients experience heart failure as their hearts struggle to compensate for the presence of leaks or other defects. In most conditions, the heart becomes fatigued, limiting the child's ability to be active, go to school, and participate in daily life.

What cultural or regional factors affect the treatment of these conditions?

Families in Haiti often have complex cultural mechanisms for understanding cardiac illnesses and their causes, sometimes involving voudou or other religious belief systems. Nevertheless, the overwhelming majority of Haitian families in our medical partner's program also engage with the medical explanations and treatment of these conditions. Parents are willing and cooperative participants in their child's treatment.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The patient is first referred to our medical partner, Haiti Cardiac Alliance (HCA), by a pediatrician or another medical practitioner who detects symptoms that might be cardiac in nature. HCA staff then perform an echocardiogram to diagnose the cardiac condition. If surgery is required, the child joins a triaged waitlist to be placed for surgery with partner hospitals. It can sometimes take 6-12 months to move through this waitlist. During this period, HCA provides periodic cardiac checkups, changing the patient's triage position as appropriate. The child and his/her guardian then travel to the hospital with an HCA social worker. Typically, the child spends 4-5 days in or near the hospital prior to surgery for testing and examinations. After surgery, he or she spends several more days as an inpatient prior to being discharged. When the child is strong enough to travel, usually after several more weeks, he/she returns home to Haiti. HCA provides regular cardiac checkups for at least five years postoperatively before the final discharge from their program.

What is the impact of this treatment on the patient’s life?

These treatments are almost always life-saving in nature. These cardiac conditions are not survivable over the long-term without surgery. Within weeks after surgery, the patient should notice a difference in energy level. Many patients also undergo a growth spurt and/or gain significant weight after a surgery.

What potential side effects or risks come with this treatment?

The risk of death during or shortly after an open-heart surgical procedure is about 3%. Other risks, though rare, include stroke and post-operative infection. In a small percentage of cases, the material used to patch the hole "blows," and a follow-up surgery is necessary to re-patch the defect.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

Patients come to Haiti Cardiac Alliance (HCA) from the entirety of Haiti. This can involve three days of travel in buses, pickup trucks, or even on horseback. There is no cardiac surgery of any kind available in Haiti outside of the HCA treatment network.

What are the alternatives to this treatment?

In general, patients are treated with medications to prevent heart failure until they are ready to travel. Patients may also seek care from traditional healers, who may use liquids and powders derived from local plants and roots.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.