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Success! Edwin from Kenya raised $805 for life-changing spinal surgery.

Edwin
100%
  • $805 raised, $0 to go
$805
raised
$0
to go
Fully funded
Edwin's treatment was fully funded on June 1, 2016.

Photo of Edwin post-operation

August 20, 2016

Edwin received successful spinal surgery.

Edwin’s spina bifida repair was successful after some unexpected delays due to body rashes and the flu. His parents are overwhelmed by the fact that their son has finally gotten the treatment they much awaited for. There are no words to describe the joy his parents had as they left for home knowing that their son received surgery. The treatment has greatly minimized the risk of getting exposed to infections and emergent of a tethered cord that can cause distortion of the spine.

“We can’t thank you enough for your assistance!” Edwin’s father shared. “You have no idea how much it means to us to have this financial burden taken away. As a family we would like to convey our thanks and appreciation for the way that the situation was handled and the kindness and informative way in which the doctors helped us out. My son is healthy and well due to the treatment he has received.”

Edwin’s spina bifida repair was successful after some unexpected delays due to body rashes and the flu. His parents are overwhelmed by the f...

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May 23, 2016

Edwin is a 17-month-old baby boy and the last-born in a family of two children. The family lives in a one room rental house in Kenya. Edwin’s father is a security guard in an estate near their home while his mother was a cleaner before she quit to care for Edwin.

Edwin was born with a leaking mass swelling on his lower back that has been growing in size. To prevent infections from the leaking, Edwin has required dressing changes for the swelling. His parents were advised to seek for specialized treatment and went to a government hospital, but the wait became unbearable as their case kept getting postponed. Finally, a friend advised them to visit African Mission Healthcare Foundation (AMHF).

A surgery to correct the open spina bifida is required to avoid the risks of infection or the development of a tethered cord. These complications can lead to either scolisis or kyphosis, and loss of muscle function of the lower limbs. Edwin’s parents have contributed $73 towards their son’s treatment, but are not able to raise all the money needed for their son’s treatment. To cover the cost of treatment, they need $805.

“Please help my son get treated,” Edwin’s father shares.

Edwin is a 17-month-old baby boy and the last-born in a family of two children. The family lives in a one room rental house in Kenya. Edwin’...

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Edwin's Timeline

  • May 23, 2016
    PROFILE SUBMITTED

    Edwin was submitted by Joan Kadagaya, Curative Medical Support Program-Partner Representative at African Mission Healthcare.

  • May 29, 2016
    TREATMENT OCCURRED

    Edwin received treatment at BethanyKids Kijabe Hospital (BKKH) in Kenya. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • June 1, 2016
    PROFILE PUBLISHED

    Edwin's profile was published to start raising funds.

  • June 1, 2016
    FULLY FUNDED

    Edwin's treatment was fully funded.

  • August 20, 2016
    TREATMENT UPDATE

    Edwin's treatment was successful. Read the update.

Funded by 25 donors

Funded by 25 donors

Treatment
Spina Bifida Closure
  • Diagnosis
  • Procedure
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

The patient has a mass or lesion on the back that leaks cerebral spinal fluid, which puts him or her at risk of infection.

​What is the impact on patients’ lives of living with these conditions?

Spina bifida can cause incontinence, bladder and kidney damage, and paralysis and numbness in the lower limbs, bladder, and sphincter. It can also lead to hydrocephalus as a result of disturbance to the fluid in the brain. Hydrocephalus can lead to cognitive dysfunction, blindness, and death.

What cultural or regional factors affect the treatment of these conditions?

Spina bifida is more common in developing countries due to improper and inadequate nutrition. Foods containing folic acid are scarce, and food is not fortified. In Kenya, however, the Ministry of Health has recently started a program to give expectant mothers folic acid for free at government facilities.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

After surgery, the patient's hospital stay ranges from two days to three weeks. The length of stay depends on the healing rate of the wound and will be extended if the patient also undergoes a shunt insertion to treat hydrocephalus. However, shunt insertions are usually performed about one month after this surgery. The patient is continually monitored. If the wound heals and the patient is in a neurologically stable condition, the surgery is considered successful.

What is the impact of this treatment on the patient’s life?

Surgery performed within the first days of a child’s life prevents infection and saves the spine and brain from further damage. Early surgery also minimizes the risk of paralysis. Later treatment may save the child's life and prevent further damage.

What potential side effects or risks come with this treatment?

This surgery is moderately risky, and complications depend on the severity of the case.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

There are few quality care centers in the region. Hospitals lack adequate resources and expertise to treat this condition. With about one neurosurgeon per 10,000,000 people in East Africa, initial treatment for spina bifida is often unavailable.

What are the alternatives to this treatment?

Surgery is the primary option for most types of spina bifida.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.