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Success! Amos from Kenya raised $1,097 to fund spina bifida closure.

Amos
100%
  • $1,097 raised, $0 to go
$1,097
raised
$0
to go
Fully funded
Amos's treatment was fully funded on December 20, 2017.

Photo of Amos post-operation

September 22, 2017

Amos underwent spina bifida closure.

He had the mass on his back repaired. Amos is less likely to suffer infection or develop tethered cord syndrome.

Amos’s mother says, “I still hope my son will be able to lead a normal life and with minimal health complications. Thank you Watsi.”

He had the mass on his back repaired. Amos is less likely to suffer infection or develop tethered cord syndrome. Amos’s mother says, “I s...

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September 5, 2017

Amos is a one-month-old infant and an only child. His mother is a single parent and unemployed. She works to support both her son and her brothers, who are still in school.

Shortly after he was born, Amos was diagnosed with myelomeningiocele, which is a birth defect where his backbone did not fuse and membranes surrounding his spinal cord did not properly form. This is the most severe form of spina bifida.

Amos was admitted to a different hospital but could not be treated due to lack of funds. He was then referred to a Watsi care center in hopes of receiving treatment there. His mother was able to borrow $10 to cover the transportation costs for this visit.

He will need $1,097 to fund a spina bifida closure procedure. This surgery will close his backbone and prevent him from getting further infections. Surgery is scheduled for September 6.

Amos’s mother hopes he will one day be able to live a normal life free of pain and illness.

Amos is a one-month-old infant and an only child. His mother is a single parent and unemployed. She works to support both her son and her br...

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Amos's Timeline

  • September 5, 2017
    PROFILE SUBMITTED

    Amos was submitted by Joan Kadagaya, Curative Medical Support Program-Partner Representative at African Mission Healthcare, our medical partner in Kenya.

  • September 06, 2017
    TREATMENT OCCURRED

    Amos received treatment at BethanyKids Kijabe Hospital (BKKH). Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • September 18, 2017
    PROFILE PUBLISHED

    Amos's profile was published to start raising funds.

  • September 22, 2017
    TREATMENT UPDATE

    Amos's treatment was successful. Read the update.

  • December 20, 2017
    FULLY FUNDED

    Amos's treatment was fully funded.

Funded by 12 donors

Funded by 12 donors

Treatment
Spina Bifida Closure
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $1,097 for Amos's treatment
Hospital Fees
$889
Medical Staff
$0
Medication
$82
Supplies
$0
Labs
$126
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

The patient has a mass or lesion on the back that leaks cerebral spinal fluid, which puts him or her at risk of infection.

​What is the impact on patients’ lives of living with these conditions?

Spina bifida can cause incontinence, bladder and kidney damage, and paralysis and numbness in the lower limbs, bladder, and sphincter. It can also lead to hydrocephalus as a result of disturbance to the fluid in the brain. Hydrocephalus can lead to cognitive dysfunction, blindness, and death.

What cultural or regional factors affect the treatment of these conditions?

Spina bifida is more common in developing countries due to improper and inadequate nutrition. Foods containing folic acid are scarce, and food is not fortified. In Kenya, however, the Ministry of Health has recently started a program to give expectant mothers folic acid for free at government facilities.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

After surgery, the patient's hospital stay ranges from two days to three weeks. The length of stay depends on the healing rate of the wound and will be extended if the patient also undergoes a shunt insertion to treat hydrocephalus. However, shunt insertions are usually performed about one month after this surgery. The patient is continually monitored. If the wound heals and the patient is in a neurologically stable condition, the surgery is considered successful.

What is the impact of this treatment on the patient’s life?

Surgery performed within the first days of a child’s life prevents infection and saves the spine and brain from further damage. Early surgery also minimizes the risk of paralysis. Later treatment may save the child's life and prevent further damage.

What potential side effects or risks come with this treatment?

This surgery is moderately risky, and complications depend on the severity of the case.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

There are few quality care centers in the region. Hospitals lack adequate resources and expertise to treat this condition. With about one neurosurgeon per 10,000,000 people in East Africa, initial treatment for spina bifida is often unavailable.

What are the alternatives to this treatment?

Surgery is the primary option for most types of spina bifida.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.