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Success! Biancha from Haiti raised $897 to fund brain surgery to heal her hydrocephalus condition.

Biancha
100%
  • $897 raised, $0 to go
$897
raised
$0
to go
Fully funded
Biancha's treatment was fully funded on October 21, 2022.

Photo of Biancha post-operation

November 3, 2022

Biancha underwent brain surgery to heal her hydrocephalus condition.

Sweet Biancha underwent hydrocephalus treatment to drain the fluids in her brain. She is healing well and will now have a chance to grow and develop without further complications from hydrocephalus.

Her family is happy and relieved that the procedure is done to give her a chance at a happy and healthy life.

Sweet Biancha underwent hydrocephalus treatment to drain the fluids in her brain. She is healing well and will now have a chance to grow and...

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June 22, 2022

Biancha is a 4-month-old baby girl from Haiti, who is the first child born to her parents. Biancha’s mother loves to sing to her and wants to see her daughter grow up healthy.

Biancha has been diagnosed with hydrocephalus, a condition in which excess cerebrospinal fluid accumulates in the brain, increasing intracranial pressure. As a result of her condition, the circumference of Biancha’s head has been increasing in size, and she has difficulty feeding. Without treatment, Biancha will experience severe physical and developmental delays as she grows older.

Our medical partner, Project Medishare, is requesting $897 to cover the cost of surgery for Biancha at Hospital Bernard Mevs. This is the only facility in Haiti where surgery for treating hydrocephalus is performed. This procedure, which is scheduled for June 23rd, will drain the excess fluid from Biancha’s brain, reducing the intracranial pressure, and greatly improving Biancha’s quality of life. With proper treatment, Biancha will hopefully develop into a strong and healthy young girl.

Her family is hoping for a complete recovery, and is happy she will not be suffering anymore.

Biancha is a 4-month-old baby girl from Haiti, who is the first child born to her parents. Biancha's mother loves to sing to her and wants t...

Read more

Biancha's Timeline

  • June 22, 2022
    PROFILE SUBMITTED

    Biancha was submitted by Jennifer Rogers, Chief Nursing Officer at Project Medishare.

  • June 28, 2022
    PROFILE PUBLISHED

    Biancha's profile was published to start raising funds.

  • July 8, 2022
    TREATMENT OCCURRED

    Biancha received treatment at Hospital Bernard Mevs in Haiti. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • October 21, 2022
    FULLY FUNDED

    Biancha's treatment was fully funded.

  • November 3, 2022
    TREATMENT UPDATE

    Biancha's treatment was successful. Read the update.

Funded by 15 donors

Funded by 15 donors

Treatment
Hydrocephalus ETV
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $897 for Biancha's treatment
Hospital Fees
$357
Medical Staff
$100
Medication
$80
Supplies
$0
Labs
$10
Radiology
$350
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

Families usually notice this condition with their child as their head grows large. These children do not reach normal developmental milestones and become unable to hold their head up, sit on their own, or talk. Some children become very irritable and become unable to suck and swallow so getting enough nutrition becomes difficult.

​What is the impact on patients’ lives of living with these conditions?

Children living with hydrocephaly are living with some form of brain damage that progresses as they get older. This damage will prevent them from developing on a normal trajectory. They have trouble eating, being able to sit, stand and communicate. Often they develop seizures and often experience pain and irritability. If it remains untreated, this condition will lead to death.

What cultural or regional factors affect the treatment of these conditions?

There is a lot of fear and stigma toward these patients as their heads grow large. Families with children who have hydrocephalus have trouble finding caregivers and support because of this fear. Also it is a financial burden to care for these children because of medication for seizures and the extra care they require as they grow older.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The treatment process involves a surgery to stop the extra fluid in the brain from accumulating and putting pressure on the brain. This is done by making a hole in part of the brain to drain the liquid (ETV). The patient usually spends one or two nights in the hospital and then goes home with a tiny incision in their head and abdomen.

What is the impact of this treatment on the patient’s life?

This treatment is the only thing that will save the patient’s life. This treatment will prevent further brain damage. If it is caught early it allows the child to grow and develop fully. If it is caught late, the patient can receive therapy to assist them to overcome the developmental difficulties caused by the damage already done to their brain.

What potential side effects or risks come with this treatment?

The main complication caused by this surgery is simply that is does not work. In this case the child is given another surgery and a shunt is placed.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

There is only one hospital in the country that performs surgeries for children with hydrocephaly. This hospital is in Port au Prince, Haiti. Children that live in the North or South of the country have to travel very far for clinic visits and surgery. This requires spending all day or several days on public transport to reach the hospital.

What are the alternatives to this treatment?

There are no current alternatives this treatment. If the brain damage is too far advanced then palliative care to treat the child’s pain and support the family is the only other option.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Michelle

Michelle is a young child with a sweet smile. She is the firstborn of a two-child family. Her parents are modest farmers who grow potatoes and vegetables primarily for their own family's consumption. Additionally, they run a small kiosk out of their home, but its limited earnings are insufficient to cover their basic needs. Michelle is presently enrolled in nursery school at a nearby public school. Michelle had a normal cold when she visited our medical facility. She was gasping loudly while inhaling and coughing frequently. Since last year, Michelle has been ill. Her mother noticed that whenever she had a cold, she would frequently complain of a sore throat and cough a lot. She also have a hard time sleeping, has trouble breathing, and has difficulty feeding because she always breathes through her mouth. Michelle has to wear extra warm clothing to stay warm during the colder months because her nose always gets congested, which is hard for her. She has been an inactive child as she is always tired. Her sleep patterns are constantly off, and she easily nods asleep during the school day, which has a negative impact on how well she does academically. Due to recurring tonsil infections that are resistant to therapy, Michelle has been in and out of the hospital several times. During her last visit, the doctor examined her and realized that her tonsils and adenoids had hypertrophied. She has been diagnosed with grade three tonsils, and since she was not responding to any medication, the doctor advised them to have surgery, which would provide a lasting, long-term solution to her problem. Michelle's parents have medical insurance, but in the last three months, they did not manage to pay their monthly subscriptions as they were low on income. Their coverage is in arrears, and unfortunately, it will not cover her procedure. She requires $714 for her surgery to be done, and her parents are appealing to all well-wishers reading her story to assist her in getting her surgery. Michelle's mother says, “My daughter has really suffered over a long period of time. She has taken numerous drugs without any noticeable change in her, and this has me very concerned. I want her to be able to have a regular life and do well in school. Please assist her so that she can eventually realize her goals."

30% funded

30%funded
$218raised
$496to go

Meet another patient you can support

100% of your donation funds life-changing surgery.