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Success! Desiree from Venezuela raised $1,500 to fund treatment for amniotic band syndrome.

Desiree
100%
  • $1,500 raised, $0 to go
$1,500
raised
$0
to go
Fully funded
Desiree's treatment was fully funded on December 9, 2021.

Photo of Desiree post-operation

December 16, 2021

Desiree underwent treatment for amniotic band syndrome.

Desiree’s treatment was successful and now she will be relieved of her pain and symptoms. As she recovers, Desiree will be able to dance, play, and run without pain or bleeding. She was also be able to grow up healthy and is no longer at risk for future complications.

Desiree’s mother said: “Thank you so much, knowing that now her bleeding will stop and she will be able to run and play without any complications makes me really happy, now and always thank you so much.”

Desiree's treatment was successful and now she will be relieved of her pain and symptoms. As she recovers, Desiree will be able to dance, pl...

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November 8, 2021

Desiree is a three-year-old girl from Venezuela. Seven months ago, her family left Venezuela for Colombia seeking better opportunities. After tragically experiencing the loss of Desiree’s siblings, Desiree fills her parents’ life with joy and happiness. She loves playing with dolls and dancing. One day, her parents hope she will become a ballerina.

Desiree was born with amniotic band syndrome. Her condition has affected one of her right toes, which frequently bleeds. Fortunately, our medical partner, Clínica Noel, is helping Desiree receive treatment. On December 7th, she will undergo surgery to stop the bleeding and help her live a healthy and active life ahead. After surgery, she will be able to walk, run, and dance without pain. Now, her family needs help raising $1,500 to fund Desiree’s procedure and care.

Desiree’s mother shared, “first of all I would like to thank you all for making this all possible. Thanks to you and the donors my daughter will stop her pain. I would love to invite people to continue making their donations in order to help families that unfortunately can’t pay for their kids’ treatment.”

Desiree is a three-year-old girl from Venezuela. Seven months ago, her family left Venezuela for Colombia seeking better opportunities. Afte...

Read more

Desiree's Timeline

  • November 8, 2021
    PROFILE SUBMITTED

    Desiree was submitted by SofĂ­a Gaviria Miranda, Head of Donations at ClĂ­nica Noel.

  • November 30, 2021
    PROFILE PUBLISHED

    Desiree's profile was published to start raising funds.

  • December 7, 2021
    TREATMENT OCCURRED

    Desiree received treatment at ClĂ­nica Noel in Colombia. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • December 9, 2021
    FULLY FUNDED

    Desiree's treatment was fully funded.

  • December 16, 2021
    TREATMENT UPDATE

    Desiree's treatment was successful. Read the update.

Funded by 29 donors

Treatment
Amniotic Band Syndrome
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $2,278 for Desiree's treatment
Subsidies fund $778 and Watsi raises the remaining $1,500
Hospital Fees
$1,145
Medical Staff
$1,035
Medication
$98
Supplies
$0
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

Babies with Amniotic Band Syndrome can have creases, or indentations, around their finger, hand, arm, toe, foot or leg; all or part of a limb missing; swelling (edema) because bands restrict the flow of blood or lymph; a difference in the length of their arms or legs; and, a gap (cleft) or other difference in their head, face, belly or chest.

​What is the impact on patients’ lives of living with these conditions?

If left untreated, the amniotic bands wrap tighter around the affected limbs or body parts, which can lead to limb deformity, webbed toes or fingers, or defects of the head, face, or spine.

What cultural or regional factors affect the treatment of these conditions?

In Colombia, it’s hard to have access to good health insurance coverage, is rare that patients are driven to a specialized institution, and even when they are, families often don’t have enough money to pay for the treatment or to travel to the city where they are going to get surgery.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

When patients are driven to an orthopedist, the doctor orders X-rays to determine the best approach when in surgery. During surgery the doctor removes the extra tissue and restores the blood flow to keep functional extremities.

What is the impact of this treatment on the patient’s life?

Improves the function of the fingers, prevents vascular congestion of the fingers, improves the aesthetic appearance and functional use of the hand and/or foot.

What potential side effects or risks come with this treatment?

Vascular injury, loss of finger mobility, and, as in any surgery, there's risk of bleeding and infection.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

In Colombia, it’s hard to have access to good health insurance coverage, is rare that patients are driven to a specialized institution, and even when they are, families often don’t have enough money to pay for the treatment.

What are the alternatives to this treatment?

There are not other alternatives to this treatment.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.