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Success! Ashley from Haiti raised $957 to fund hydrocephalus treatment so she can grow up healthy.

Ashley
100%
  • $957 raised, $0 to go
$957
raised
$0
to go
Fully funded
Ashley's treatment was fully funded on March 8, 2022.

Photo of Ashley post-operation

March 18, 2022

Ashley underwent hydrocephalus treatment so she can grow up healthy.

Our medical partner shared that Ashley’s surgery went very well and she is recovering from her worrisome condition. Her family is relieved that Ashley will be able to continue to developing along a healthy path. They are optimistic and happy their child will now be able to keep up with other children!

Our medical partner shared that Ashley's surgery went very well and she is recovering from her worrisome condition. Her family is relieved t...

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February 1, 2022

Ashley is a 14-month-old girl from Haiti. She is the only child in her family and she loves to smile.

Ashley has been diagnosed with hydrocephalus, a condition in which excess cerebrospinal fluid accumulates in the brain and increases intracranial pressure. As a result of her condition, Ashley has been experiencing a growing head. She had a shunt placed when she was younger but there was a problem and it had to be removed. She needs a new shunt to treat the hydrocephaly. Without treatment, Ashley will experience severe physical and developmental delays.

Our medical partner, Project Medishare, is requesting $957 to cover the cost of surgery for Ashley at Hospital Bernard Mevs that will treat her hydrocephalus. This is the only site in the country where this care is currently available and the procedure is scheduled to take place on February 1st. This critical treatment will place a shunt to drain the excess fluid from Ashley’s brain to reduce intracranial pressure and greatly improve her quality of life. With proper treatment, Ashley will hopefully develop into a strong, healthy young girl.

Ashley’s family is looking forward to having a child that can run and play with the other children as she grows older and not be any different from her friends.

Ashley is a 14-month-old girl from Haiti. She is the only child in her family and she loves to smile. Ashley has been diagnosed with hyd...

Read more

Ashley's Timeline

  • February 1, 2022
    PROFILE SUBMITTED

    Ashley was submitted by Jennifer Rogers, Chief Nursing Officer at Project Medishare.

  • February 1, 2022
    TREATMENT OCCURRED

    Ashley received treatment at Hospital Bernard Mevs in Haiti. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • February 2, 2022
    PROFILE PUBLISHED

    Ashley's profile was published to start raising funds.

  • March 8, 2022
    FULLY FUNDED

    Ashley's treatment was fully funded.

  • March 18, 2022
    TREATMENT UPDATE

    Ashley's treatment was successful. Read the update.

Funded by 12 donors

Funded by 12 donors

Treatment
Hydrocephalus VPS
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $957 for Ashley's treatment
Hospital Fees
$357
Medical Staff
$100
Medication
$80
Supplies
$60
Labs
$10
Radiology
$350
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

Families usually notice this condition with their child as their head grows large. These children do not reach normal developmental milestones and become unable to hold their head up, sit on their own, or talk. Some children become very irritable and become unable to suck and swallow so getting enough nutrition becomes difficult.

​What is the impact on patients’ lives of living with these conditions?

Children living with hydrocephaly are living with some form of brain damage that progresses as they get older. This damage will prevent them from developing on a normal trajectory. They have trouble eating, being able to sit, stand and communicate. Often they develop seizures and often experience pain and irritability. If it remains untreated, this condition will lead to death.

What cultural or regional factors affect the treatment of these conditions?

There is a lot of fear and stigma toward these patients as their heads grow large. Families with children who have hydrocephalus have trouble finding caregivers and support because of this fear. Also it is a financial burden to care for these children because of medication for seizures and the extra care they require as they grow older.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The treatment process involves a surgery to stop the extra fluid in the brain from accumulating and putting pressure on the brain. This is done by putting a small tube in the brain that drains the fluid into the abdomen (VP shunt). The patient usually spends one or two nights in the hospital and then goes home with a tiny incision in their head and abdomen.

What is the impact of this treatment on the patient’s life?

This treatment is the only thing that will save the patient’s life. This treatment will prevent further brain damage. If it is caught early it allows the child to grow and develop fully. If it is caught late, the patient can receive therapy to assist them to overcome the developmental difficulties caused by the damage already done to their brain.

What potential side effects or risks come with this treatment?

In some children the shunt that drains the fluid into the abdomen can become blocked or infected. In these cases the shunt is removed, the infection is treated, and the shunt is replaced.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

There is only one hospital in the country that performs surgeries for children with hydrocephaly. This hospital is in Port au Prince, Haiti. Children that live in the North or South of the country have to travel very far for clinic visits and surgery. This requires spending all day or several days on public transport to reach the hospital.

What are the alternatives to this treatment?

There are no current alternatives this treatment. If the brain damage is too far advanced then palliative care to treat the child’s pain and support the family is the only other option.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.