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Success! Marianaelle from Haiti raised $1,500 for life-saving heart surgery.

Marianaelle
100%
  • $1,500 raised, $0 to go
$1,500
raised
$0
to go
Fully funded
Marianaelle's treatment was fully funded on September 19, 2016.

Photo of Marianaelle post-operation

January 13, 2017

Marianaelle underwent life-saving heart surgery.

During surgery, the defect in Marianaelle’s heart was reconstructed. Blood can now circulate normally through her heart.

Now, Marianaelle is home in Haiti, and she is doing well. She should not require any additional heart surgeries.

“I would like to say thank you to everyone who helped Marianaelle have this surgery,” says her father. “God bless you all.”

During surgery, the defect in Marianaelle's heart was reconstructed. Blood can now circulate normally through her heart. Now, Marianaell...

Read more
September 16, 2016

Marianaelle is a 16-month-old girl and lives in Leogane, a city in southwest Haiti, with her mother, father, and an older sister. Her mother works in the market, and her father is currently seeking employment.

Marianaelle was born with a cardiac condition called double outlet right ventricle, in which both major arteries emerging from the heart are attached to just one of the heart’s chambers, instead of two. This leads to heart failure and can be fatal if not corrected surgically.

$1,500 in Watsi funding, and an additional $10,000 subsidy from Have a Heart Cayman Islands will fund the life-saving heart surgery that Marianaelle needs to grow up healthy.

“Marianaelle has been sick ever since she was born, but I am excited and hopeful that she will become a normal child after her surgery,” her mother shared.

Marianaelle is a 16-month-old girl and lives in Leogane, a city in southwest Haiti, with her mother, father, and an older sister. Her mother...

Read more

Marianaelle's Timeline

  • September 16, 2016
    PROFILE SUBMITTED

    Marianaelle was submitted by Owen Robinson, Executive Director at Haiti Cardiac Alliance.

  • September 16, 2016
    PROFILE PUBLISHED

    Marianaelle's profile was published to start raising funds.

  • September 19, 2016
    TREATMENT OCCURRED

    Marianaelle received treatment at Health City Cayman Islands in Cayman Islands. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • September 19, 2016
    FULLY FUNDED

    Marianaelle's treatment was fully funded.

  • January 13, 2017
    TREATMENT UPDATE

    Marianaelle's treatment was successful. Read the update.

Funded by 2 donors

Funded by 2 donors

Treatment
Overseas Prep and Transportation
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $1,980 for Marianaelle's treatment
Subsidies fund $480 and Watsi raises the remaining $1,500
Hospital Fees
$0
Medical Staff
$450
Medication
$360
Supplies
$0
Travel
$900
Labs
$180
Other
$90
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

When a hole exists in the heart, a physician can hear a buzzing noise, or murmur, in the child's chest as blood passes through the hole at high velocity. The child's parents might notice that their son or daughter cannot keep up with other children in daily activities. In severe cases, the lack of oxygen in the bloodstream can lead to dramatic symptoms, such as blue lips and tongue, clubbed fingers and toes, and heart failure. The patients treated by Haiti Cardiac Alliance tend to fall into two categories. They are either born with some type of hole or defect in the heart, or they develop valve disease as a result of an untreated strep throat infection (rheumatic fever). Patients with rheumatic valve disease experience swelling of the abdomen and extremities, as the heart tries to circulate blood through the body despite the valve's dysfunction.

​What is the impact on patients’ lives of living with these conditions?

Virtually all of the conditions treated at Haiti Cardiac Alliance will eventually lead to death without surgery, the majority of them within one to two years. In the meantime, patients experience heart failure as their hearts struggle to compensate for the presence of leaks or other defects. In most conditions, the heart becomes fatigued, limiting the child's ability to be active, go to school, and participate in daily life.

What cultural or regional factors affect the treatment of these conditions?

Families in Haiti often have complex cultural mechanisms for understanding cardiac illnesses and their causes, sometimes involving voudou or other religious belief systems. Nevertheless, the overwhelming majority of Haitian families in our medical partner's program also engage with the medical explanations and treatment of these conditions. Parents are willing and cooperative participants in their child's treatment.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The patient is first referred to our medical partner, Haiti Cardiac Alliance (HCA), by a pediatrician or another medical practitioner who detects symptoms that might be cardiac in nature. HCA staff then perform an echocardiogram to diagnose the cardiac condition. If surgery is required, the child joins a triaged waitlist to be placed for surgery with partner hospitals. It can sometimes take 6-12 months to move through this waitlist. During this period, HCA provides periodic cardiac checkups, changing the patient's triage position as appropriate. The child and his/her guardian then travel to the hospital with an HCA social worker. Typically, the child spends 4-5 days in or near the hospital prior to surgery for testing and examinations. After surgery, he or she spends several more days as an inpatient prior to being discharged. When the child is strong enough to travel, usually after several more weeks, he/she returns home to Haiti. HCA provides regular cardiac checkups for at least five years postoperatively before the final discharge from their program.

What is the impact of this treatment on the patient’s life?

These treatments are almost always life-saving in nature. These cardiac conditions are not survivable over the long-term without surgery. Within weeks after surgery, the patient should notice a difference in energy level. Many patients also undergo a growth spurt and/or gain significant weight after a surgery.

What potential side effects or risks come with this treatment?

The risk of death during or shortly after an open-heart surgical procedure is about 3%. Other risks, though rare, include stroke and post-operative infection. In a small percentage of cases, the material used to patch the hole "blows," and a follow-up surgery is necessary to re-patch the defect.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

Patients come to Haiti Cardiac Alliance (HCA) from the entirety of Haiti. This can involve three days of travel in buses, pickup trucks, or even on horseback. There is no cardiac surgery of any kind available in Haiti outside of the HCA treatment network.

What are the alternatives to this treatment?

In general, patients are treated with medications to prevent heart failure until they are ready to travel. Patients may also seek care from traditional healers, who may use liquids and powders derived from local plants and roots.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.