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Kenley from Haiti raised $1,500 for a diagnostic heart procedure.

Kenley
100%
  • $1,500 raised, $0 to go
$1,500
raised
$0
to go
Fully funded
Kenley's treatment was fully funded on July 2, 2016.

Photo of Kenley post-operation

August 30, 2016

Kenley received his diagnostic heart procedure.

During the procedure, a catheter was inserted into Kenley’s heart to measure his arterial pressures and determine whether he can safely undergo cardiac surgery. The procedure itself was successful; however, because Kenley’s case is so complex the catheterization results now need to be reviewed in detail by a panel of experts to plan his course of treatment.

“I am praying that the doctors will decide that Kenley can have surgery so that he can become stronger and healthier,” his mother shared.

During the procedure, a catheter was inserted into Kenley's heart to measure his arterial pressures and determine whether he can safely unde...

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June 17, 2016

Two-year-old Kenley lives in Haiti with his mother. He has three older siblings who have all graduated from college and are working.

Kenley was born with a cardiac condition called ventricular septal defect, which is characterized by a large hole between the two lower chambers of his heart. Blood passes through this hole without first passing through the lungs to obtain oxygen, leaving him sickly and weak. Kenley also has Down syndrome.

Because of Kenley’s age and Down syndrome status, he must undergo a cardiac catheterization procedure to determine whether his defect is still repairable. During the procedure, a catheter probe will be inserted into his heart to perform the necessary measurements and tests. Afterward, we will know whether repair surgery is possible for him.

$1,500 helps to cover the costs of passports and visa for travel to the Dominican Republic for the procedure, the medical facility fee, and five days of room and board.

At present, Kenley’s siblings support the family, but his mother hopes to find employment once Kenley is healthier. “I am praying that everything goes well and that there is a way to fix Kenley’s heart problem,” she shares.

Two-year-old Kenley lives in Haiti with his mother. He has three older siblings who have all graduated from college and are working. Kenl...

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Kenley's Timeline

  • June 17, 2016
    PROFILE SUBMITTED

    Kenley was submitted by Owen Robinson, Executive Director at Haiti Cardiac Alliance.

  • June 17, 2016
    TREATMENT OCCURRED

    Kenley received treatment at Clinica Corominas in Haiti. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • July 1, 2016
    PROFILE PUBLISHED

    Kenley's profile was published to start raising funds.

  • July 2, 2016
    FULLY FUNDED

    Kenley's treatment was fully funded.

  • August 30, 2016
    TREATMENT UPDATE

    We received an update on Kenley. Read the update.

Funded by 24 donors

Funded by 24 donors

Treatment
Diagnostic Heart Catheterization
  • Diagnosis
  • Procedure
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

When a hole exists in the heart, a physician can hear a buzzing noise, or murmur, in the child's chest as blood passes through the hole at high velocity. The child's parents might notice that their son or daughter cannot keep up with other children in daily activities. In severe cases, the lack of oxygen in the bloodstream can lead to dramatic symptoms, such as blue lips and tongue, clubbed fingers and toes, and heart failure. The patients who undergo diagnostic catheterization are born with one of several types of congenital holes or defects in the heart.

​What is the impact on patients’ lives of living with these conditions?

Virtually all of the conditions treated at Haiti Cardiac Alliance will eventually lead to death without surgery, the majority of them within one to two years. In the meantime, patients experience heart failure as their hearts struggle to compensate for the presence of leaks or other defects. In most conditions, the heart becomes fatigued, limiting the child's ability to be active, go to school, and participate in daily life.

What cultural or regional factors affect the treatment of these conditions?

Families in Haiti often have complex cultural mechanisms for understanding cardiac illnesses and their causes, sometimes involving voudou or other religious belief systems. Nevertheless, the overwhelming majority of Haitian families in our medical partner's program also engage with the medical explanations and treatment of these conditions. Parents are willing and cooperative participants in their child's treatment.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The patient is first referred to our medical partner, Haiti Cardiac Alliance (HCA), by a pediatrician or another medical practitioner who detects symptoms that might be cardiac in nature. HCA staff then perform an echocardiogram to diagnose the cardiac condition. In some cases, the child may be eligible for surgery, but only after a cardiac catheterization to determine whether the pressures upon the lungs are still reversible. In this case, the child travels to the Dominican Republic to undergo this procedure. The child stay in the hospital overnight and is discharged the next day. Once the results are received, HCA can decide on next steps.

What is the impact of this treatment on the patient’s life?

The cardiac catheterization itself is diagnostic in nature and does not cure the patient's heart condition. However, the patient cannot be accepted for surgery anywhere without first undergoing this procedure. It is thus a life-saving step in his or her treatment plan.

What potential side effects or risks come with this treatment?

Diagnostic catheterization is a relatively low-risk procedure. However, risks include excessive bleeding at the incision site and accidental puncture of the cardiac tissue with the catheter probe.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

The country of Haiti currently has no cardiac catheterization lab, which is why all of HCA's patients must travel to Dominican Republic for this service.

What are the alternatives to this treatment?

There are no alternatives to diagnostic catheterization for measuring pulmonary pressures and assessing surgical viability.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.