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Success! Joven from Haiti raised $897 to fund life-saving hydrocephalus treatment.

Joven
100%
  • $897 raised, $0 to go
$897
raised
$0
to go
Fully funded
Joven's treatment was fully funded on December 28, 2021.

Photo of Joven post-operation

January 4, 2022

Joven underwent life-saving hydrocephalus treatment.

Joven is a beautiful boy who will now be able to continue to develop and grow healthily. His treatment went well and his family is hopeful for the future and grateful for the support.

His mom shared, “I waited so long for this surgery. It finally happened. Thank you is not even enough to tell them.”

Joven is a beautiful boy who will now be able to continue to develop and grow healthily. His treatment went well and his family is hopeful f...

Read more
November 18, 2021

Joven is a 14-month-old boy from Haiti who is very loved by his family.

Joven has been diagnosed with hydrocephalus, a condition in which excess cerebrospinal fluid accumulates in the brain and increases intracranial pressure. As a result of his condition, Joven has been experiencing growth in his head and without treatment, Joven will experience severe physical and developmental delays.

Our medical partner, Project Medishare, is requesting $897 to cover the cost of surgery for Joven at Hospital Bernard Mevs that will treat his hydrocephalus. This is the only site in the country where this care is currently available and the procedure is scheduled to take place on November 19th. This critical treatment will drain the excess fluid from Joven’s brain to reduce intracranial pressure and greatly improve his quality of life. With proper treatment, Joven will hopefully develop into a strong, healthy young boy.

Joven’s mom states, “I have been so worried ever since I learned of his diagnosis. The first time I began to have hope was when I heard WATSI may be able to help Joven have surgery.”

Joven is a 14-month-old boy from Haiti who is very loved by his family. Joven has been diagnosed with hydrocephalus, a condition in whic...

Read more

Joven's Timeline

  • November 18, 2021
    PROFILE SUBMITTED

    Joven was submitted by Jennifer Rogers, Chief Nursing Officer at Project Medishare.

  • November 19, 2021
    PROFILE PUBLISHED

    Joven's profile was published to start raising funds.

  • November 23, 2021
    TREATMENT OCCURRED

    Joven received treatment at Hospital Bernard Mevs in Haiti. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • December 28, 2021
    FULLY FUNDED

    Joven's treatment was fully funded.

  • January 4, 2022
    TREATMENT UPDATE

    Joven's treatment was successful. Read the update.

Funded by 22 donors

Funded by 22 donors

Treatment
Hydrocephalus ETV
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $897 for Joven's treatment
Hospital Fees
$357
Medical Staff
$100
Medication
$80
Supplies
$0
Labs
$10
Radiology
$350
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

Families usually notice this condition with their child as their head grows large. These children do not reach normal developmental milestones and become unable to hold their head up, sit on their own, or talk. Some children become very irritable and become unable to suck and swallow so getting enough nutrition becomes difficult.

​What is the impact on patients’ lives of living with these conditions?

Children living with hydrocephaly are living with some form of brain damage that progresses as they get older. This damage will prevent them from developing on a normal trajectory. They have trouble eating, being able to sit, stand and communicate. Often they develop seizures and often experience pain and irritability. If it remains untreated, this condition will lead to death.

What cultural or regional factors affect the treatment of these conditions?

There is a lot of fear and stigma toward these patients as their heads grow large. Families with children who have hydrocephalus have trouble finding caregivers and support because of this fear. Also it is a financial burden to care for these children because of medication for seizures and the extra care they require as they grow older.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The treatment process involves a surgery to stop the extra fluid in the brain from accumulating and putting pressure on the brain. This is done by making a hole in part of the brain to drain the liquid (ETV). The patient usually spends one or two nights in the hospital and then goes home with a tiny incision in their head and abdomen.

What is the impact of this treatment on the patient’s life?

This treatment is the only thing that will save the patient’s life. This treatment will prevent further brain damage. If it is caught early it allows the child to grow and develop fully. If it is caught late, the patient can receive therapy to assist them to overcome the developmental difficulties caused by the damage already done to their brain.

What potential side effects or risks come with this treatment?

The main complication caused by this surgery is simply that is does not work. In this case the child is given another surgery and a shunt is placed.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

There is only one hospital in the country that performs surgeries for children with hydrocephaly. This hospital is in Port au Prince, Haiti. Children that live in the North or South of the country have to travel very far for clinic visits and surgery. This requires spending all day or several days on public transport to reach the hospital.

What are the alternatives to this treatment?

There are no current alternatives this treatment. If the brain damage is too far advanced then palliative care to treat the child’s pain and support the family is the only other option.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Elinipa

Elinipa is a beautiful two-year-old girl. She is an incredibly friendly child who loves to play with her five older siblings. At birth, she was a healthy child. It wasn't until she was learning to walk however, that her mother noticed that her legs were slightly curved, yet even so they did not seek treatment assuming it was a minor problem that she would outgrow. Elinipa has now been diagnosed with bilateral valgus, which is a condition caused by an excessive accumulation of fluoride in the bones, which often stems from contaminated drinking water. As a result of her condition, Elinipa's legs bow inward to the point that her knees touch. This makes walking persistently more difficult as she continues to grow. Through our medical partner's outreach program her parents learned that their daughter needs surgery to correct her legs. Elinipa's parents are small scale famers who depend entirely on what they harvest to make a living. As a result, their income is not enough to afford to take Elinipa to the hospital to treat her condition. Our medical partner, African Mission Healthcare, is requesting $880 to fund corrective surgery for Elinipa. The procedure is scheduled to take place on May 13th at our medical partner's care center, Arusha Lutheran Medical Centre. With this treatment Elinipa's mobility will hopefully be restored, thus allowing her to participate in a variety of activities, and greatly decreasing her risk of future complications. Elinipa’s father says, “I am worried with how her legs continue to bend inward. Please help us.”

40% funded

40%funded
$360raised
$520to go

Meet another patient you can support

100% of your donation funds life-changing surgery.