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Success! Youbendjy from Haiti raised $1,500 to fund prep for cardiac surgery.

Youbendjy
100%
  • $1,500 raised, $0 to go
$1,500
raised
$0
to go
Fully funded
Youbendjy's treatment was fully funded on June 24, 2017.

Photo of Youbendjy post-operation

March 7, 2017

Youbendjy underwent successful cardiac surgery.

During surgery, the abnormal veins were disconnected from Youbendjy’s heart and reconnected in the anatomically normal locations. Blood now circulates normally through his heart and body, and he should now be able to lead a normal life with no need for further surgery.

His mother says, “When I learned about my baby’s heart problem, I had almost no hope that it could ever be fixed. I’m so thankful and happy to see my son cured.”

During surgery, the abnormal veins were disconnected from Youbendjy's heart and reconnected in the anatomically normal locations. Blood now ...

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February 8, 2017

Youbendjy is a four-month-old baby who lives in a neighborhood in Port-au-Prince with his mother, father, and older sister. Neither parent is employed full-time, but both of them work as day laborers when they can.

Youbendjy was born with a cardiac condition called total anomalous pulmonary vein return, in which the pulmonary veins connect to the right atrium of the heart. Typically, these veins should connect to the left atrium. This condition deprives his body of oxygen and leads to heart failure.

Youbendjy will undergo a surgery in which the veins are disconnected from the heart and reconnected in the appropriate location. First, he will undergo a full cardiac assessment on February 9. This assessment will include physical exams, labs, and an overnight stay at the hospital. Our medical partner, Haiti Cardiac Alliance, is requesting $1,500 to fund these procedures. Funding for Youbendjy also covers the cost of medications and social support for him and his family. Gift of Life International is contributing $7,000 to cover additional costs associated with Youbendjy’s surgical care.

“I thought from the time my baby was born that we would lose him,” says his mother. “It is like a dream for me that we have a chance for surgery.”

Youbendjy is a four-month-old baby who lives in a neighborhood in Port-au-Prince with his mother, father, and older sister. Neither parent i...

Read more

Youbendjy's Timeline

  • February 8, 2017
    PROFILE SUBMITTED

    Youbendjy was submitted by Owen Robinson, Executive Director at Haiti Cardiac Alliance, our medical partner in Haiti.

  • February 09, 2017
    TREATMENT OCCURRED

    Youbendjy received treatment at Hospital Pediatrico Robert Reid Cabral.

  • February 13, 2017
    PROFILE PUBLISHED

    Youbendjy's profile was published to start raising funds.

  • March 07, 2017
    TREATMENT UPDATE

    Youbendjy's treatment was successful. Read the update.

  • June 24, 2017
    FULLY FUNDED

    Youbendjy's treatment was fully funded.

Treatment
Overseas Prep and Transportation
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $2,080 for Youbendjy's treatment
Subsidies fund $580 and Watsi raises the remaining $1,500
Hospital Fees
$1,000
Medical Staff
$450
Medication
$360
Supplies
$0
Labs
$180
Other
$90
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

When a hole exists in the heart, a physician can hear a buzzing noise, or murmur, in the child's chest as blood passes through the hole at high velocity. The child's parents might notice that their son or daughter cannot keep up with other children in daily activities. In severe cases, the lack of oxygen in the bloodstream can lead to dramatic symptoms, such as blue lips and tongue, clubbed fingers and toes, and heart failure. The patients treated by Haiti Cardiac Alliance tend to fall into two categories. They are either born with some type of hole or defect in the heart, or they develop valve disease as a result of an untreated strep throat infection (rheumatic fever). Patients with rheumatic valve disease experience swelling of the abdomen and extremities, as the heart tries to circulate blood through the body despite the valve's dysfunction.

​What is the impact on patients’ lives of living with these conditions?

Virtually all of the conditions treated at Haiti Cardiac Alliance will eventually lead to death without surgery, the majority of them within one to two years. In the meantime, patients experience heart failure as their hearts struggle to compensate for the presence of leaks or other defects. In most conditions, the heart becomes fatigued, limiting the child's ability to be active, go to school, and participate in daily life.

What cultural or regional factors affect the treatment of these conditions?

Families in Haiti often have complex cultural mechanisms for understanding cardiac illnesses and their causes, sometimes involving voudou or other religious belief systems. Nevertheless, the overwhelming majority of Haitian families in our medical partner's program also engage with the medical explanations and treatment of these conditions. Parents are willing and cooperative participants in their child's treatment.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The patient is first referred to our medical partner, Haiti Cardiac Alliance (HCA), by a pediatrician or another medical practitioner who detects symptoms that might be cardiac in nature. HCA staff then perform an echocardiogram to diagnose the cardiac condition. If surgery is required, the child joins a triaged waitlist to be placed for surgery with partner hospitals. It can sometimes take 6-12 months to move through this waitlist. During this period, HCA provides periodic cardiac checkups, changing the patient's triage position as appropriate. The child and his/her guardian then travel to the hospital with an HCA social worker. Typically, the child spends 4-5 days in or near the hospital prior to surgery for testing and examinations. After surgery, he or she spends several more days as an inpatient prior to being discharged. When the child is strong enough to travel, usually after several more weeks, he/she returns home to Haiti. HCA provides regular cardiac checkups for at least five years postoperatively before the final discharge from their program.

What is the impact of this treatment on the patient’s life?

These treatments are almost always life-saving in nature. These cardiac conditions are not survivable over the long-term without surgery. Within weeks after surgery, the patient should notice a difference in energy level. Many patients also undergo a growth spurt and/or gain significant weight after a surgery.

What potential side effects or risks come with this treatment?

The risk of death during or shortly after an open-heart surgical procedure is about 3%. Other risks, though rare, include stroke and post-operative infection. In a small percentage of cases, the material used to patch the hole "blows," and a follow-up surgery is necessary to re-patch the defect.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

Patients come to Haiti Cardiac Alliance (HCA) from the entirety of Haiti. This can involve three days of travel in buses, pickup trucks, or even on horseback. There is no cardiac surgery of any kind available in Haiti outside of the HCA treatment network.

What are the alternatives to this treatment?

In general, patients are treated with medications to prevent heart failure until they are ready to travel. Patients may also seek care from traditional healers, who may use liquids and powders derived from local plants and roots.

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