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Mercy from Kenya raised $805 for surgery to treat spina bifida.

Mercy
100%
  • $805 raised, $0 to go
$805
raised
$0
to go
Fully funded
Mercy's treatment was fully funded on February 3, 2016.
March 7, 2016

Mercy sadly and unexpectedly passed away after receiving care.

We are deeply saddened to report that after receiving spina bifida repair surgery, Mercy passed away on her way home from the hospital.

Our medical partner, African Mission Healthcare Foundation (AMHF) explains that Mercy was rushed to the hospital five days before her anticipated surgery date when the mass on her back ruptured. “Upon assessment, doctors found that Mercy had septicemia and was put on medication to treat the infection,” AMHF shares. “Six days later, Mercy had severe anemia and fevers. She received surgery for spina bifida repair. She was in critical condition and put on oxygen. Mercy’s parents requested to take her home because of the poor prognosis that Mercy’s doctors had explained. They knew that when the oxygen therapy was stopped in order for them to leave the hospital, Mercy would not make it home alive. Mercy passed on later on their way home.”

Despite the outcome, we remain grateful Mercy was able to access the care she needed. We remain committed to transparently reporting all outcomes, even the ones we wish were different. Thank you for your support of Mercy and her family.

We are deeply saddened to report that after receiving spina bifida repair surgery, Mercy passed away on her way home from the hospital. ...

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January 20, 2016

Mercy is a six-month-old girl from Kenya. She was brought to our medical partner, African Mission Healthcare Foundation (AMHF), by her parents and her uncle. Mercy lives in a two room house with six other siblings where her mother watches over the family at home and nearby, her father works in a tea factory.

When Mercy was born, she developed a sac-like protrusion on the lower backbone. This open defect on her spine, a condition called spina bifida, has already been hindering her normal development for the last few months. The congenital deformity is often a consequence of fetal hydrocephalus where cerebrospinal fluid adds pressure to the spinal cord. “Mercy came to the hospital with a leaking mass, so surgery must be done [promptly] to avoid severe infection and other complications,” explains AMHF. If her condition goes untreated, tethered cord syndrome is likely to develop, resulting in a permanently hunched back or a spine bent sideways.

Mercy requires $805 for a spina bifida closure surgery, in which a surgeon will correct, reconstruct, and close the deformity. Long term monitoring and braces are part of the treatment process to observe her walking ability and gauge surgery success. AMHF believes the surgery will eliminate infections, prevent more nerve damage in the future, and decrease her chances of developing tethered cord syndrome.

Mercy’s father says, “I hope Mercy will get treatment and this condition will be past us. Please help us make her treatment possible.”

Mercy is a six-month-old girl from Kenya. She was brought to our medical partner, African Mission Healthcare Foundation (AMHF), by her paren...

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Mercy's Timeline

  • January 20, 2016
    PROFILE SUBMITTED

    Mercy was submitted by Beatrice Njoroge, Curative Medical Support Program Coordinator at African Mission Healthcare.

  • February 1, 2016
    PROFILE PUBLISHED

    Mercy's profile was published to start raising funds.

  • February 3, 2016
    FULLY FUNDED

    Mercy's treatment was fully funded.

  • February 5, 2016
    TREATMENT OCCURRED

    Mercy received treatment at BethanyKids Kijabe Hospital (BKKH) in Kenya. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • March 7, 2016
    TREATMENT UPDATE

    We received an update on Mercy. Read the update.

Funded by 31 donors

Funded by 31 donors

Treatment
Spina Bifida Closure
  • Diagnosis
  • Procedure
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

The patient has a mass or lesion on the back that leaks cerebral spinal fluid, which puts him or her at risk of infection.

​What is the impact on patients’ lives of living with these conditions?

Spina bifida can cause incontinence, bladder and kidney damage, and paralysis and numbness in the lower limbs, bladder, and sphincter. It can also lead to hydrocephalus as a result of disturbance to the fluid in the brain. Hydrocephalus can lead to cognitive dysfunction, blindness, and death.

What cultural or regional factors affect the treatment of these conditions?

Spina bifida is more common in developing countries due to improper and inadequate nutrition. Foods containing folic acid are scarce, and food is not fortified. In Kenya, however, the Ministry of Health has recently started a program to give expectant mothers folic acid for free at government facilities.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

After surgery, the patient's hospital stay ranges from two days to three weeks. The length of stay depends on the healing rate of the wound and will be extended if the patient also undergoes a shunt insertion to treat hydrocephalus. However, shunt insertions are usually performed about one month after this surgery. The patient is continually monitored. If the wound heals and the patient is in a neurologically stable condition, the surgery is considered successful.

What is the impact of this treatment on the patient’s life?

Surgery performed within the first days of a child’s life prevents infection and saves the spine and brain from further damage. Early surgery also minimizes the risk of paralysis. Later treatment may save the child's life and prevent further damage.

What potential side effects or risks come with this treatment?

This surgery is moderately risky, and complications depend on the severity of the case.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

There are few quality care centers in the region. Hospitals lack adequate resources and expertise to treat this condition. With about one neurosurgeon per 10,000,000 people in East Africa, initial treatment for spina bifida is often unavailable.

What are the alternatives to this treatment?

Surgery is the primary option for most types of spina bifida.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.