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Umar is a toddler from Sierra Leone who needs $1,500 to fund prep for cardiac surgery.

Umar
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  • $758 raised, $742 to go
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$742
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August 1, 2017

Umar is a three-year-old boy from Sierra Leone. He lives with his mother and grandparents. Umar is a happy child and likes listening to music on the radio and playing with the kids in his neighborhood.

Umar was born with a heart condition called Tetralogy of Fallot, where there exists a hole between two chambers of his heart and a muscular blockage in one of his valves.

On August 2, Umar will be traveling from his home in Sierra Leone to our medical partner’s care center, Narayana Institute Of Cardiac Sciences, in Bangalore, India. Although Umar is not from Haiti, our medical partner, Haiti Cardiac Alliance, is collaborating with other partners to make his surgery possible, and so is asking for $1,500 to help cover the cost of Umar’s surgery prep. Another organization, Have a Heart Cayman, has contributed $12,000 towards his treatment. We are also fundraising for his transportation costs.

“I am excited for Umar to be able to go to preschool once his heart is healthy!” says Umar’s mother.

Umar is a three-year-old boy from Sierra Leone. He lives with his mother and grandparents. Umar is a happy child and likes listening to musi...

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Umar's Timeline

  • August 1, 2017
    PROFILE SUBMITTED

    Umar was submitted by Owen Robinson, Executive Director at Haiti Cardiac Alliance, our medical partner in Sierra Leone.

  • August 03, 2017
    TREATMENT OCCURRED

    Umar received treatment at Narayana Institute Of Cardiac Sciences.

  • August 25, 2017
    PROFILE PUBLISHED

    Umar's profile was published to start raising funds.

  • October 25, 2017
    AWAITING UPDATE

    Awaiting Umar's treatment update from Haiti Cardiac Alliance.

  • TODAY
    AWAITING FUNDING

    Umar is currently raising funds for his treatment.

Funded by 28 donors

Treatment
Overseas Prep and Transportation
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $2,080 for Umar's treatment
Subsidies fund $580 and Watsi raises the remaining $1,500
Hospital Fees
$1,000
Medical Staff
$450
Medication
$360
Supplies
$0
Labs
$180
Other
$90
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

When a hole exists in the heart, a physician can hear a buzzing noise, or murmur, in the child's chest as blood passes through the hole at high velocity. The child's parents might notice that their son or daughter cannot keep up with other children in daily activities. In severe cases, the lack of oxygen in the bloodstream can lead to dramatic symptoms, such as blue lips and tongue, clubbed fingers and toes, and heart failure. The patients treated by Haiti Cardiac Alliance tend to fall into two categories. They are either born with some type of hole or defect in the heart, or they develop valve disease as a result of an untreated strep throat infection (rheumatic fever). Patients with rheumatic valve disease experience swelling of the abdomen and extremities, as the heart tries to circulate blood through the body despite the valve's dysfunction.

​What is the impact on patients’ lives of living with these conditions?

Virtually all of the conditions treated at Haiti Cardiac Alliance will eventually lead to death without surgery, the majority of them within one to two years. In the meantime, patients experience heart failure as their hearts struggle to compensate for the presence of leaks or other defects. In most conditions, the heart becomes fatigued, limiting the child's ability to be active, go to school, and participate in daily life.

What cultural or regional factors affect the treatment of these conditions?

Families in Haiti often have complex cultural mechanisms for understanding cardiac illnesses and their causes, sometimes involving voudou or other religious belief systems. Nevertheless, the overwhelming majority of Haitian families in our medical partner's program also engage with the medical explanations and treatment of these conditions. Parents are willing and cooperative participants in their child's treatment.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The patient is first referred to our medical partner, Haiti Cardiac Alliance (HCA), by a pediatrician or another medical practitioner who detects symptoms that might be cardiac in nature. HCA staff then perform an echocardiogram to diagnose the cardiac condition. If surgery is required, the child joins a triaged waitlist to be placed for surgery with partner hospitals. It can sometimes take 6-12 months to move through this waitlist. During this period, HCA provides periodic cardiac checkups, changing the patient's triage position as appropriate. The child and his/her guardian then travel to the hospital with an HCA social worker. Typically, the child spends 4-5 days in or near the hospital prior to surgery for testing and examinations. After surgery, he or she spends several more days as an inpatient prior to being discharged. When the child is strong enough to travel, usually after several more weeks, he/she returns home to Haiti. HCA provides regular cardiac checkups for at least five years postoperatively before the final discharge from their program.

What is the impact of this treatment on the patient’s life?

These treatments are almost always life-saving in nature. These cardiac conditions are not survivable over the long-term without surgery. Within weeks after surgery, the patient should notice a difference in energy level. Many patients also undergo a growth spurt and/or gain significant weight after a surgery.

What potential side effects or risks come with this treatment?

The risk of death during or shortly after an open-heart surgical procedure is about 3%. Other risks, though rare, include stroke and post-operative infection. In a small percentage of cases, the material used to patch the hole "blows," and a follow-up surgery is necessary to re-patch the defect.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

Patients come to Haiti Cardiac Alliance (HCA) from the entirety of Haiti. This can involve three days of travel in buses, pickup trucks, or even on horseback. There is no cardiac surgery of any kind available in Haiti outside of the HCA treatment network.

What are the alternatives to this treatment?

In general, patients are treated with medications to prevent heart failure until they are ready to travel. Patients may also seek care from traditional healers, who may use liquids and powders derived from local plants and roots.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.