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Luis from Guatemala raised $967 to diagnose and treat a rare genetic condition.

Luis
100%
  • $967 raised, $0 to go
$967
raised
$0
to go
Fully funded
Luis's treatment was fully funded on April 28, 2016.

Photo of Luis post-operation

September 17, 2016

Luis received treatment for his rare genetic condition.

After receiving an MRI and seeing that his rare autoimmune disorder had not reached his brain (which would have required treatment with anticonvulsant medications), our medical team decided to modify his treatment plan. Now, he is receiving an intense treatment which has been successfully limited the spread of the scleroderma further into his head and to his brain. Although this treatment makes him feel bad sometimes due to the strong immune suppressant drugs, we have been working with his mother to time the treatments for his bedtime so he is sleeping during the worst of his side effects. Luis and his mother are thrilled to finally have a diagnosis and control over this condition.

“Thank you for these medicines, although they make me feel sick I want to be strong and I want to get better and not have this spread,” Luis shared.

After receiving an MRI and seeing that his rare autoimmune disorder had not reached his brain (which would have required treatment with anti...

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April 20, 2016

Eight-year-old Luis lives with his mother and his older sister Maribel in Guatemala. His is being raised by a single mother, who works hard cleaning neighbor’s homes to earn money for her two children to go to school and eat. Luis is in second grade, and loves studying and playing with his friends and older sister.

Luis is thought to have a rare genetic condition called Parry-Romberg Syndrome. This has made the tissues on one side of his face shrink, making his teeth move, and puts him at risk of future seizures due to neurological abnormalities.

His mother first noticed a strange red mark on her son’s face when he was two, and thought it was a bad mosquito bite. Then, it grew, and a large part of his face has now atrophied, causing him headaches because of his crooked teeth. Most worrisome, though, is his future risk of seizures. His mother says that he has had one seizure before and that she is scared that he will have more. That is why his mother brought him to our clinic to have him evaluated, and why it is so important that he receives an MRI to visualize his abnormalities and give him an appropriate medication.

His mother works hard, but she barely makes enough to support herself and her two kids, and cannot afford the high-quality medical care her son needs.

$967 will fund the treatment that Luis needs. This treatment will give Luis the medications and expensive imaging he needs. His mother will no longer be scared about his future due to his condition, and he will be able to attend school without fear of having a seizure, giving him the chance to live an independent and full life.

In his interview with the Wuqu’ Kawoq medical staff, Luis said: “I want to be a fireman when I grow up but my mom wants me to be a successful professional.”

Eight-year-old Luis lives with his mother and his older sister Maribel in Guatemala. His is being raised by a single mother, who works hard ...

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Luis's Timeline

  • April 20, 2016
    PROFILE SUBMITTED

    Luis was submitted by Jessica Hawkins at Wuqu’ Kawoq.

  • April 21, 2016
    PROFILE PUBLISHED

    Luis's profile was published to start raising funds.

  • April 27, 2016
    TREATMENT OCCURRED

    Luis received treatment at Clinic Panajachel in Guatemala. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • April 28, 2016
    FULLY FUNDED

    Luis's treatment was fully funded.

  • September 17, 2016
    TREATMENT UPDATE

    We received an update on Luis. Read the update.

Funded by 18 donors

Funded by 18 donors

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.