Eight-year-old Luis lives with his mother and his older sister Maribel in Guatemala. His is being raised by a single mother, who works hard cleaning neighbor’s homes to earn money for her two children to go to school and eat. Luis is in second grade, and loves studying and playing with his friends and older sister.
Luis is thought to have a rare genetic condition called Parry-Romberg Syndrome. This has made the tissues on one side of his face shrink, making his teeth move, and puts him at risk of future seizures due to neurological abnormalities.
His mother first noticed a strange red mark on her son’s face when he was two, and thought it was a bad mosquito bite. Then, it grew, and a large part of his face has now atrophied, causing him headaches because of his crooked teeth. Most worrisome, though, is his future risk of seizures. His mother says that he has had one seizure before and that she is scared that he will have more. That is why his mother brought him to our clinic to have him evaluated, and why it is so important that he receives an MRI to visualize his abnormalities and give him an appropriate medication.
His mother works hard, but she barely makes enough to support herself and her two kids, and cannot afford the high-quality medical care her son needs.
$967 will fund the treatment that Luis needs. This treatment will give Luis the medications and expensive imaging he needs. His mother will no longer be scared about his future due to his condition, and he will be able to attend school without fear of having a seizure, giving him the chance to live an independent and full life.
In his interview with the Wuqu’ Kawoq medical staff, Luis said: “I want to be a fireman when I grow up but my mom wants me to be a successful professional.”