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Rayvan is a 1-month-old baby boy from Kenya who needs $1,151 to fund life-changing spina bifida surgery.

Rayvan
76%
  • $879 raised, $272 to go
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$272
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May 17, 2022

Rayvan is a 1 month old baby boy living with his parents and three siblings in Kenya. Rayvan’s mother used to plough her neighbors’ farms, while his father herds cattle and ploughs farms to earn a living for their family.

Rayvan parents shared that he was born at home because they could not afford to pay for his delivery at a hospital. After his birth, his mother noticed that Rayvan had a large swelling on the lower part of his back. She immediately took him to a nearby hospital to be examined. Rayvan was given some medication, and sent back home. After using the medication for a few weeks, there was no change in his condition. His mother shared her concerns about Rayvan with her friends, and one of them referred her to our medical partner’s care center BethanyKids Hospital in Kijabe.

On arrival, he was examined and diagnosed with spina bifida, a condition that requires surgical intervention to heal. Without surgery, Rayvan is at risk of developing paralysis of his lower limbs, infection of the exposed nervous tissue, and possible developmental delays. His parents do not have health insurance, and are unable to pay for the surgery he needs.

Our medical partner, African Mission Healthcare, is requesting $1,151 to cover the cost of Rayvan’s spina bifida closure surgery, which is scheduled to take place on May 18th at BethanyKids Hospital. This procedure will hopefully spare Rayvan from the risks associated with his condition, and enable him to grow up strong and healthy.

Rayvan’s mother says: “I have never seen such a condition before and I was very much worried about my child. Now I’m happy to hear that he can get treated. The sad part is that I cannot afford the treatment but I believe that God will make a way.”

Rayvan is a 1 month old baby boy living with his parents and three siblings in Kenya. Rayvan's mother used to plough her neighbors' farms, w...

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Rayvan's Timeline

  • May 17, 2022
    PROFILE SUBMITTED

    Rayvan was submitted by Robert Kariuki, Process Coordinator at African Mission Healthcare.

  • May 18, 2022
    TREATMENT SCHEDULED

    Rayvan was scheduled to receive treatment at BethanyKids Kijabe Hospital (BKKH) in Kenya. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • May 23, 2022
    PROFILE PUBLISHED

    Rayvan's profile was published to start raising funds.

  • TODAY
    AWAITING FUNDING

    Rayvan is currently raising funds for his treatment.

  • TBD
    AWAITING UPDATE

    Awaiting Rayvan's treatment update from African Mission Healthcare.

Funded by 23 donors

Funded by 23 donors

Treatment
Spina Bifida Closure
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $1,151 for Rayvan's treatment
Hospital Fees
$889
Medical Staff
$0
Medication
$82
Supplies
$0
Labs
$126
Other
$54
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

The patient has a mass or lesion on the back that leaks cerebral spinal fluid, which puts him or her at risk of infection.

​What is the impact on patients’ lives of living with these conditions?

Spina bifida can cause incontinence, bladder and kidney damage, and paralysis and numbness in the lower limbs, bladder, and sphincter. It can also lead to hydrocephalus as a result of disturbance to the fluid in the brain. Hydrocephalus can lead to cognitive dysfunction, blindness, and death.

What cultural or regional factors affect the treatment of these conditions?

Spina bifida is more common in developing countries due to improper and inadequate nutrition. Foods containing folic acid are scarce, and food is not fortified. In Kenya, however, the Ministry of Health has recently started a program to give expectant mothers folic acid for free at government facilities.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

After surgery, the patient's hospital stay ranges from two days to three weeks. The length of stay depends on the healing rate of the wound and will be extended if the patient also undergoes a shunt insertion to treat hydrocephalus. However, shunt insertions are usually performed about one month after this surgery. The patient is continually monitored. If the wound heals and the patient is in a neurologically stable condition, the surgery is considered successful.

What is the impact of this treatment on the patient’s life?

Surgery performed within the first days of a child’s life prevents infection and saves the spine and brain from further damage. Early surgery also minimizes the risk of paralysis. Later treatment may save the child's life and prevent further damage.

What potential side effects or risks come with this treatment?

This surgery is moderately risky, and complications depend on the severity of the case.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

There are few quality care centers in the region. Hospitals lack adequate resources and expertise to treat this condition. With about one neurosurgeon per 10,000,000 people in East Africa, initial treatment for spina bifida is often unavailable.

What are the alternatives to this treatment?

Surgery is the primary option for most types of spina bifida.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.