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Success! Marvenson from Haiti raised $1,343 to fund overseas transportation for cardiac treatment.

Marvenson
100%
  • $1,343 raised, $0 to go
$1,343
raised
$0
to go
Fully funded
Marvenson's treatment was fully funded on September 1, 2017.

Photo of Marvenson post-operation

August 25, 2017

Marvenson underwent cardiac treatment.

During surgery, Marvenson’s aorta was reconnected to the left ventricle and the pulmonary artery to the right ventricle; blood now flows normally through his heart. He should be able to lead a normal life with no major symptoms from this condition.

His mother says, “I am so happy to see that Marvenson has energy and can run and play. Thank you to everyone who helped him!”

During surgery, Marvenson's aorta was reconnected to the left ventricle and the pulmonary artery to the right ventricle; blood now flows nor...

Read more
June 8, 2017

Marvenson is a two-year-old boy who lives in the northern part of Haiti. He resides with his parents—both of whom work as fishermen—as well as his three older siblings. He enjoys playing with his siblings and dressing up to go to church.

Marvenson was born with a cardiac condition called double outlet right ventricle (DORV), in which both of the heart’s major arteries connect to one chamber of the heart, instead of two. This malformation can lead to heart failure and has the potential to become fatal.

Our medical partner, Haiti Cardiac Alliance, is requesting $1,343 to transport this toddler to his much-needed surgery. He is scheduled to undergo treatment on June 8.

His mother shares, “I am a bit scared about the surgery but I know that God will protect my son and make him well!”

Marvenson is a two-year-old boy who lives in the northern part of Haiti. He resides with his parents—both of whom work as fishermen—as well ...

Read more

Marvenson's Timeline

  • June 8, 2017
    PROFILE SUBMITTED

    Marvenson was submitted by Owen Robinson, Executive Director at Haiti Cardiac Alliance, our medical partner in Haiti.

  • June 08, 2017
    TREATMENT OCCURRED

    Marvenson received treatment at Health City Cayman Islands. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • June 20, 2017
    PROFILE PUBLISHED

    Marvenson's profile was published to start raising funds.

  • August 25, 2017
    TREATMENT UPDATE

    Marvenson's treatment was successful. Read the update.

  • September 01, 2017
    FULLY FUNDED

    Marvenson's treatment was fully funded.

Funded by 3 donors

Funded by 3 donors

Treatment
Patient Air Transport
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $1,343 for Marvenson's treatment
Hospital Fees
$0
Medical Staff
$0
Medication
$0
Supplies
$0
Travel
$1,343
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

When a hole exists in the heart, a physician can hear a buzzing noise, or murmur, in the child's chest as blood passes through the hole at high velocity. The child's parents might notice that their son or daughter cannot keep up with other children in daily activities. In severe cases, the lack of oxygen in the bloodstream can lead to dramatic symptoms, such as blue lips and tongue, clubbed fingers and toes, and heart failure. The patients treated by Haiti Cardiac Alliance tend to fall into two categories. They are either born with some type of hole or defect in the heart, or they develop valve disease as a result of an untreated strep throat infection (rheumatic fever). Patients with rheumatic valve disease experience swelling of the abdomen and extremities, as the heart tries to circulate blood through the body despite the valve's dysfunction.

​What is the impact on patients’ lives of living with these conditions?

Virtually all of the conditions treated at Haiti Cardiac Alliance will eventually lead to death without surgery, the majority of them within one to two years. In the meantime, patients experience heart failure as their hearts struggle to compensate for the presence of leaks or other defects. In most conditions, the heart becomes fatigued, limiting the child's ability to be active, go to school, and participate in daily life.

What cultural or regional factors affect the treatment of these conditions?

Families in Haiti often have complex cultural mechanisms for understanding cardiac illnesses and their causes, sometimes involving voudou or other religious belief systems. Nevertheless, the overwhelming majority of Haitian families in our medical partner's program also engage with the medical explanations and treatment of these conditions. Parents are willing and cooperative participants in their child's treatment.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The patient is first referred to our medical partner, Haiti Cardiac Alliance (HCA), by a pediatrician or another medical practitioner who detects symptoms that might be cardiac in nature. HCA staff then perform an echocardiogram to diagnose the cardiac condition. If surgery is required, the child joins a triaged waitlist to be placed for surgery with partner hospitals. It can sometimes take 6-12 months to move through this waitlist. During this period, HCA provides periodic cardiac checkups, changing the patient's triage position as appropriate. The child and his/her guardian then travel to the hospital with an HCA social worker. Typically, the child spends 4-5 days in or near the hospital prior to surgery for testing and examinations. After surgery, he or she spends several more days as an inpatient prior to being discharged. When the child is strong enough to travel, usually after several more weeks, he/she returns home to Haiti. HCA provides regular cardiac checkups for at least five years postoperatively before the final discharge from their program.

What is the impact of this treatment on the patient’s life?

These treatments are almost always life-saving in nature. These cardiac conditions are not survivable over the long-term without surgery. Within weeks after surgery, the patient should notice a difference in energy level. Many patients also undergo a growth spurt and/or gain significant weight after a surgery.

What potential side effects or risks come with this treatment?

The risk of death during or shortly after an open-heart surgical procedure is about 3%. Other risks, though rare, include stroke and post-operative infection. In a small percentage of cases, the material used to patch the hole "blows," and a follow-up surgery is necessary to re-patch the defect.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

Patients come to Haiti Cardiac Alliance (HCA) from the entirety of Haiti. This can involve three days of travel in buses, pickup trucks, or even on horseback. There is no cardiac surgery of any kind available in Haiti outside of the HCA treatment network.

What are the alternatives to this treatment?

In general, patients are treated with medications to prevent heart failure until they are ready to travel. Patients may also seek care from traditional healers, who may use liquids and powders derived from local plants and roots.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Philomena

Philomena was diagnosed with ARM at birth. With this condition, the little one was found to lack an anal opening and instead was passing stool through her vagina. A few hours after birth, Philomena, one in a set of twins, was noted to have a distended abdomen. The doctor quickly checked on the baby and discovered she lacked an anal opening. To keep Philomena from getting a fistula, the doctors put in a colostomy at three days. Philomena’s parents paid for this through some family savings they had. When they left for home, Philomena’s twin sister developed a persistent cough which was later found to be a hole in the heart. "I have never felt this drained ever in my life. Since I gave birth I am always in hospitals with either one of my two babies,” says Philomena’s mother. Due to lack of finances, Philomena’s parents shared their plight with their church members and one of them advised that they visit Watsi Partner Care Center BethanyKids Hospital. At BethanyKids a surgery to create an anal opening has been recommended. If not treated, Philomena will not lead a normal life and will be forced to use a colostomy for life. The surgery is a cost Philomena’s parents cannot bear. Philomena’s father is a carpenter while her mother closed her grocery store to tend to the children. Together they have five children with three currently in school. With very limited income and having exhausted their savings, Philomena’s parents are not able to raise the funds needed. They had defaulted on paying the national health insurance premiums as they could not keep up, but they’ve been advised to try to maintain this coverage in the future given their family's health needs. “Please help us. It is quite a stressful time for us but we believe we will come from it as victors,” says Philomena’s mother.

50% funded

50%funded
$355raised
$353to go

Meet another patient you can support

100% of your donation funds life-changing surgery.