December 5, 2013
Meet Karen! She is 10 and lives in Guatemala. Karen has Parry-Romberg syndrome, a rare disease that our partner, Wuqu’ Kawoq, has struggled to diagnose.
Wuqu’ Kawoq writes: “This beautiful young girl has been suffering from progressive atrophy and deformity of her right face for three years. She came to see us six months ago, and we’ve been thinking really hard about the case, consulting with multiple specialists in Boston and elsewhere.”
Parry-Romberg syndrome causes progressive loss of bone and muscle in the face. If left untreated, it can lead to extreme and permanent facial deformity.
Through all of this, Karen has continued to stay strong. Her doctors describe her as a delightful child with a bright smile and positive outlook.
For $1,375, we can help Karen receive treatment that will stop the progressive loss of tissue in her face and give her a chance at a normal life. Let’s help Karen win this fight!
Meet Karen! She is 10 and lives in Guatemala. Karen has Parry-Romberg syndrome, a rare disease that our partner, Wuqu’ Kawoq, has struggled ...
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February 12, 2015
Karen has begun receiving treatment to fix a deformity on the right side of her face.
Since beginning treatment, Karen’s doctors report that she is doing well. She will need regular treatment for the next year but doctors are confident this will prevent further destruction of her face tissue. In the future, when Karen is older and no longer experiencing tissue damage, she may be a candidate for plastic surgery to repair any residual defects.
“The family, and the patient, are very grateful to Watsi donors for getting behind them,” said Dr. Peter Rohloff from our medical partner, Wuqu’ Kawoq. “This has been a long journey for them, and a hopeless one. But they are excited now that they have answers, and a plan, and a medical team that will support them!”
Since beginning treatment, Karen's doctors report that she is doing well. She will need regular treatment for the next year but doctors are ...
Read more