Meet Karen! She is 10 and lives in Guatemala. Karen has Parry-Romberg syndrome, a rare disease that our partner, Wuqu’ Kawoq, has struggled to diagnose.
Wuqu’ Kawoq writes: “This beautiful young girl has been suffering from progressive atrophy and deformity of her right face for three years. She came to see us six months ago, and we’ve been thinking really hard about the case, consulting with multiple specialists in Boston and elsewhere.”
Parry-Romberg syndrome causes progressive loss of bone and muscle in the face. If left untreated, it can lead to extreme and permanent facial deformity.
Through all of this, Karen has continued to stay strong. Her doctors describe her as a delightful child with a bright smile and positive outlook.
For $1,375, we can help Karen receive treatment that will stop the progressive loss of tissue in her face and give her a chance at a normal life. Let’s help Karen win this fight!