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Success! Byden from Haiti raised $957 to fund urgent surgery to treat his hydrocephalus.

Byden
100%
  • $957 raised, $0 to go
$957
raised
$0
to go
Fully funded
Byden's treatment was fully funded on January 26, 2022.

Photo of Byden post-operation

February 3, 2022

Byden underwent urgent surgery to treat his hydrocephalus.

Our medical partner just shared an update with us on Byden. He had a successful surgery to place a shunt that will help brain the fluids that are putting pressure on his brain. He will now be able to develop without further hydrocephalus symptoms and can grow up healthier.

Byden’s mother shared how she could not stop worrying about when his surgery would be able to happen. She is grateful it has now been done and he is on his way to better health.

Our medical partner just shared an update with us on Byden. He had a successful surgery to place a shunt that will help brain the fluids tha...

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January 24, 2022

Byden is a one year old boy from Haiti. He is a beautiful child loved by his family.

Byden has been diagnosed with hydrocephalus, a condition in which excess cerebrospinal fluid accumulates in the brain and increases intracranial pressure. As a result of his condition, Byden has been experiencing a growing head and some difficulty reaching typical developmental milestones for his age. He previously had a procedure called ETV to try to fix the hydrocephaly. Despite this procedure, Byden’s head continued to grow larger. Without further treatment, Byden will experience severe physical and developmental delays.

Our medical partner, Project Medishare, is requesting $957 to cover the cost of surgery for Byden at Hospital Bernard Mevs that will help heal his hydrocephalus. This is the only site in the country where this care is currently available and the procedure is scheduled to take place on January 25th. This critical treatment will place a shunt to drain the excess fluid from Byden’s brain to reduce intracranial pressure and greatly improve his quality of life. With proper treatment, Byden will hopefully develop into a strong, healthy young boy.

Byden’s family said, “We are grateful for the organizations and people that are giving him a second chance to treat his condition.”

Byden is a one year old boy from Haiti. He is a beautiful child loved by his family. Byden has been diagnosed with hydrocephalus, a condi...

Read more

Byden's Timeline

  • January 24, 2022
    PROFILE SUBMITTED

    Byden was submitted by Jennifer Rogers, Chief Nursing Officer at Project Medishare.

  • January 25, 2022
    TREATMENT OCCURRED

    Byden received treatment at Hospital Bernard Mevs in Haiti. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • January 25, 2022
    PROFILE PUBLISHED

    Byden's profile was published to start raising funds.

  • January 26, 2022
    FULLY FUNDED

    Byden's treatment was fully funded.

  • February 3, 2022
    TREATMENT UPDATE

    Byden's treatment was successful. Read the update.

Funded by 4 donors

Funded by 4 donors

Treatment
Hydrocephalus VPS
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $957 for Byden's treatment
Hospital Fees
$357
Medical Staff
$100
Medication
$80
Supplies
$60
Labs
$10
Radiology
$350
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

Families usually notice this condition with their child as their head grows large. These children do not reach normal developmental milestones and become unable to hold their head up, sit on their own, or talk. Some children become very irritable and become unable to suck and swallow so getting enough nutrition becomes difficult.

​What is the impact on patients’ lives of living with these conditions?

Children living with hydrocephaly are living with some form of brain damage that progresses as they get older. This damage will prevent them from developing on a normal trajectory. They have trouble eating, being able to sit, stand and communicate. Often they develop seizures and often experience pain and irritability. If it remains untreated, this condition will lead to death.

What cultural or regional factors affect the treatment of these conditions?

There is a lot of fear and stigma toward these patients as their heads grow large. Families with children who have hydrocephalus have trouble finding caregivers and support because of this fear. Also it is a financial burden to care for these children because of medication for seizures and the extra care they require as they grow older.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The treatment process involves a surgery to stop the extra fluid in the brain from accumulating and putting pressure on the brain. This is done by putting a small tube in the brain that drains the fluid into the abdomen (VP shunt). The patient usually spends one or two nights in the hospital and then goes home with a tiny incision in their head and abdomen.

What is the impact of this treatment on the patient’s life?

This treatment is the only thing that will save the patient’s life. This treatment will prevent further brain damage. If it is caught early it allows the child to grow and develop fully. If it is caught late, the patient can receive therapy to assist them to overcome the developmental difficulties caused by the damage already done to their brain.

What potential side effects or risks come with this treatment?

In some children the shunt that drains the fluid into the abdomen can become blocked or infected. In these cases the shunt is removed, the infection is treated, and the shunt is replaced.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

There is only one hospital in the country that performs surgeries for children with hydrocephaly. This hospital is in Port au Prince, Haiti. Children that live in the North or South of the country have to travel very far for clinic visits and surgery. This requires spending all day or several days on public transport to reach the hospital.

What are the alternatives to this treatment?

There are no current alternatives this treatment. If the brain damage is too far advanced then palliative care to treat the child’s pain and support the family is the only other option.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.