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Nylah is a newborn from Kenya who needs $1,097 to fund spinal surgery.

Nylah
32%
  • $353 raised, $744 to go
$353
raised
$744
to go
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June 22, 2017

Nylah is a newborn from Kenya who was born with a condition known as spina bifida. Spina bifida results from an incomplete formation of the spinal cord, and the condition has caused Nylah to experience weakness in her lower limbs, develop an irritable nature, and lack the ability to feed properly.

Because of her condition, Nylah is at risk of developing a tethered spinal cord, a hunched back, lower limb paralysis, and infections of the exposed nerves and tissues. Our medical partner, African Mission Healthcare Foundation, is requesting $1,097 to fund spinal surgery for Nylah. The procedure is scheduled to take place on June 23 and, once the gap in Nylah’s spinal cord is closed, will hopefully allow Nylah to proceed along a healthy developmental trajectory.

Nylah’s mother says, “We are certain that Nylah will get well and whatever treatment that she receives will be of help to her well-being.”

Nylah is a newborn from Kenya who was born with a condition known as spina bifida. Spina bifida results from an incomplete formation of the ...

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Nylah's Timeline

Funded by 9 donors

Funded by 9 donors

Treatment
Spina Bifida Closure
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $1,097 for Nylah's treatment
Hospital Fees
$889
Medical Staff
$0
Medication
$82
Supplies
$0
Labs
$126
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

The patient has a mass or lesion on the back that leaks cerebral spinal fluid, which puts him or her at risk of infection.

​What is the impact on patients’ lives of living with these conditions?

Spina bifida can cause incontinence, bladder and kidney damage, and paralysis and numbness in the lower limbs, bladder, and sphincter. It can also lead to hydrocephalus as a result of disturbance to the fluid in the brain. Hydrocephalus can lead to cognitive dysfunction, blindness, and death.

What cultural or regional factors affect the treatment of these conditions?

Spina bifida is more common in developing countries due to improper and inadequate nutrition. Foods containing folic acid are scarce, and food is not fortified. In Kenya, however, the Ministry of Health has recently started a program to give expectant mothers folic acid for free at government facilities.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

After surgery, the patient's hospital stay ranges from two days to three weeks. The length of stay depends on the healing rate of the wound and will be extended if the patient also undergoes a shunt insertion to treat hydrocephalus. However, shunt insertions are usually performed about one month after this surgery. The patient is continually monitored. If the wound heals and the patient is in a neurologically stable condition, the surgery is considered successful.

What is the impact of this treatment on the patient’s life?

Surgery performed within the first days of a child’s life prevents infection and saves the spine and brain from further damage. Early surgery also minimizes the risk of paralysis. Later treatment may save the child's life and prevent further damage.

What potential side effects or risks come with this treatment?

This surgery is moderately risky, and complications depend on the severity of the case.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

There are few quality care centers in the region. Hospitals lack adequate resources and expertise to treat this condition. With about one neurosurgeon per 10,000,000 people in East Africa, initial treatment for spina bifida is often unavailable.

What are the alternatives to this treatment?

Surgery is the primary option for most types of spina bifida.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.