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Success! Linda from Guatemala raised $1,385 to diagnose and treat developmental delays.

Linda
100%
  • $1,385 raised, $0 to go
$1,385
raised
$0
to go
Fully funded
Linda's treatment was fully funded on December 3, 2015.

Photo of Linda post-operation

March 2, 2016

Linda is undergoing treatment and further diagnostic testing.

“Our medical team is currently waiting on results of high-resolution chromosomal studies to identify any genetic abnormalities in Linda’s genes, which can take a very long time to run in laboratories in Guatemala,” explains our medical partner, Wuqu’ Kawoq (WK). “We believe the results show that she has Rett Syndrome, an aggressive neurodegenerative disorder that affects only females. Since this is a terminal syndrome that lacks a cure or a treatment, our medical team is focusing on maximizing her nutrition, making sure she’s comfortable, and counseling her family.”

“Since gastrointestinal disorders are common in children with Rett syndrome, most children lose significant weight and this exacerbates their loss of developmental milestones. When we met Linda in November, she was not eating, was having frequent diarrhea, and she was losing weight,” WK continues. “Since beginning treatment, we have helped her gain nearly two pounds! Her mom is thrilled. We are very hopeful that she will continue to gain weight and, with continued treatment and testing, we hope that we can give Linda and her family the best quality of life possible.”

“Linda is now eating so much better. I’m so happy that she is finally gaining weight. May God bless you,” shares Linda’s mother.

"Our medical team is currently waiting on results of high-resolution chromosomal studies to identify any genetic abnormalities in Linda's ge...

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November 11, 2015

Linda is a three-year-old girl from Guatemala. A few years ago, Linda’s older sister passed away from symptoms consistent with Rett syndrome, a neurodevelopmenal disorder resulting in delayed development. However, she was never properly diagnosed, as her family could not afford diagnostic tests.

Linda is now showing the same symptoms as her sister.

Linda was born a seemingly healthy child, however, “Around the age of 2 1/2 she started to lose development milestones—she used to be able to talk and walk and slowly that dissolved,” says our medical partner, Wuqu’ Kawoq (WK). “Now, she has lost the ability to walk, talk or communicate in any way. She has muscle contraction in her hands and legs and has difficulty controlling her movements.”

WK suspects that Linda has a metabolic disorder such as Tay-Sachs disease or Rett syndrome. Given Linda’s sister’s early death and her mother’s pregnancy history, Rett syndrome is a possible diagnosis.

A confirmed diagnosis is needed to help Linda and her family plan how to best care for her. With $1385, Linda will receive a full workup screening for conditions associated with developmental delays, receive routine physical therapy, and receive anti-epileptic medication to decrease muscle convulsions and allow her more comfort.

“I will take her anywhere, wherever she needs to go to get care,” says Linda’s mother. “If it’s for her I want to fight.”

Linda is a three-year-old girl from Guatemala. A few years ago, Linda's older sister passed away from symptoms consistent with Rett syndrome...

Read more

Linda's Timeline

  • November 11, 2015
    PROFILE SUBMITTED

    Linda was submitted by Katia Cnop, Watsi Account Volunteer at Wuqu’ Kawoq.

  • November 16, 2015
    TREATMENT OCCURRED

    Linda received treatment at Clinic Panajachel in Guatemala. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • December 1, 2015
    PROFILE PUBLISHED

    Linda's profile was published to start raising funds.

  • December 3, 2015
    FULLY FUNDED

    Linda's treatment was fully funded.

  • March 2, 2016
    TREATMENT UPDATE

    Linda's treatment was successful. Read the update.

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James is a 63yr old man from Elgeyo Marakwet County in Kenya. He is married and has eight children - some of still in high school while others are married. Formerly, James worked in the forestry department for twenty years and he managed to educate his children as he used to earn a salary. Currently he is a farmer who plants maize, millet and sorghum in his small piece of land for consumption and sale. He has been able to get his basic needs and that of his family through the sale of farm produce. He has no medical coverage or insurance at the moment. Recently, James fell down and rolled down a hill when he was attempting to move his cow. He is in a lot of pain, unable to use both legs. The timing of his injury is unfortunate, because he needs to tend to his farm. He has nothing that can enable him get funds at the moment. Two of his sons managed to get ksh 10,000 which is not even a quarter of the required amount for his procedure. James has suffered fractures around both his knee joints, and they require special attention so that they may not damage the articular cartilage. He needs an urgent procedure on one of his limbs, which will also enable him undergo the surgery he needs on his other leg more quickly as well. The finance issue is barring him from getting his surgery. He is now appealing to all well-wishers for help in order to get his surgery done. Fortunately, surgeons at our medical partner can help. On December 7th, James will undergo a fracture repair procedure, called an open reduction and internal fixation. He will no longer be in pain, and will be able to walk, work and provide for his family. Now, our medical partner, African Mission Healthcare Foundation, is requesting $1,145 to fund this procedure. James says, “I am in so much pain. I cannot imagine that I am not able to walk and do things on my own. I don’t regret anything, I just thank God who protected my life. Kindly help me so that I may not become a burden to my children.”

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