Gatguon is an 8-week-old baby girl from a remote area of South Sudan. The civil war in South Sudan has made it difficult for many to access healthcare and treatment, including Gatguon's family. Gatguon was born with swelling in the back of her head. Upon referral to Old Fangak Clinic, the doctor diagnosed Gatguon with spina bifida, a type of neural tube defect in which the spine does not properly close around the spinal cord. Without treatment, Gatguon is at risk of lower-limb paralysis, infection of the exposed nervous tissue, development of tethered cord syndrome, and possible developmental delays. Gatguon urgently needs spina bifida repair surgery to correct the condition and reduce risk of infection. Unfortunately, this treatment is not available for her in South Sudan. Dr Jill Seaman and her team at Old Fangak Clinic facilitated Gatguon’s travel to Kenya – a long and difficult journey for a sick baby. Now, doctors at our medical partner's care center in Kenya will perform the surgery she needs. Gatguon’s parents have two kids. Her mother is a stay-at-home mom and her father is a vegetable farmer. They are hopeful that baby Gatguon will be treated and that they will continue taking care of her and loving her unconditionally. Our medical partner, African Mission Healthcare, is helping Gatguon's family raise $1,151 to cover the cost of spina bifida closure surgery. The procedure is scheduled to take place on April 20th and will hopefully spare Gatguon of further complications and allow her to grow and develop along a healthy trajectory. Gatguon’s mother shared, “We hope that our child will be treated.”

Gebreegziabher is a brave, young, and fun boy who loves to hangout with his friends. He loves to play chase and other games with his friends and brothers. He has five siblings and shared with us that he loves goats! Gebreegziabher never went to school because of his condition. He is a shepherd and helps to keep the sheep and goats of his parents. Because of his condition, he has endured bullying, but he continues to be brave and his dad shared: “He is so strong despite his sickness. When others pick on him and speak bad things about him and things related to his disease he even gets in to fights.” Gebreegziabher's mom and dad counsel him and comfort him and help him to bring out self-confidence and strength. His dad and his mom are farmers and his mom takes care of all the household chores. Dad said: “Our area is dry. We work hard and farm but the harvest is poor with lack of rain. We purchase food because our harvest is not enough to support the family.” They also raise animals to support themselves. The community survives with the dry land and the scarcity of food by donations from the government and NGOs. But the past two years they couldn’t get the donation since they are in the war zone. For these reasons they can’t afford the medical bill for their son. Gebreegziabher was born with congenital anomaly called bladder extrophy. That is an abnormally where the bladder is open to air. Given the pain and risk of infection, he just ties clothes around the wound. His mom is very much worried and concerned because of his condition. She shared that she has excluded herself from the community for years in taking care of him and raises him and recalls that when growing up, he would sit faraway from others and boys in his age. They keep up hope for better days ahead and are a loving family who support each other the best they can. His Dad said: “He learned to exclude himself from others growing up. We are sad as a family because of his condition. The neighbor insults us, discriminate us and we feel so sad about this. We couldn’t tell what will happen to him. And we bring him to God always.”

Sophea is a 16-year-old student in grade ten. Sophea has three siblings, and she is the youngest. All three siblings currently study at the secondary school near their home. Her parents have been divorced since she was two years old, so she lives with her mother, who is a construction worker. When she is not studying, she likes to read and spend time with her school friends. Since she can remember, Sophea has had ear infections which have caused a cholesteatoma, or an abnormal skin growth, to develop in the middle ear behind the ear drum. Sophea experiences hearing loss, discharge, and fevers. Doctors has diagnosed an ear condition called microtia, which means she is missing the ear canal. Her mother has taken her to different healers for treatment but it has not improved. It is difficult for her to hear at school, she does not communicate well with friends and family, and often misses school due to infections. This makes her feel shy with strangers. Sophea traveled to our medical partner's care center to receive treatment. On March 8th, she will undergo a mastoidectomy procedure in her left ear. During this procedure, ENT surgeons will remove the cholesteatoma. Our medical partner, Children's Surgical Centre, is requesting $925 to fund this procedure. This covers medications, supplies, and inpatient care. She is hopeful that her hearing will improve and she won't have any more infections!