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Success! Dieulinda from Haiti raised $897 to fund life-saving hydrocephalus treatment.

Dieulinda
100%
  • $897 raised, $0 to go
$897
raised
$0
to go
Fully funded
Dieulinda's treatment was fully funded on October 27, 2021.

Photo of Dieulinda post-operation

November 22, 2021

Dieulinda underwent life-saving hydrocephalus treatment.

Dieulinda’s surgery was a success and this procedure will stop the damage to Dieulinda’s brain. The extra fluid that was accumulating in her head was causing pressure to her brain and would eventually cause permanent brain damage and even be fatal. Now, Dieulinda has a chance to grow and develop like every child should.

Her mother shared,”Dieulinda is doing great and our family is grateful to everyone that made the surgery possible.”

Dieulinda's surgery was a success and this procedure will stop the damage to Dieulinda's brain. The extra fluid that was accumulating in her...

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October 8, 2021

Dieulinda is a 2-month old baby girl with one older sibling. Her mother shared that the first 2 months of her life she was growing as their other child did but then they began to notice swelling in her head. At first they thought that it must be an injury and took her to the hospital to be evaluated. A CT scan showed she had developed hydrocephaly, which is a fluid build up in the brain, and her parents were devastated. After learning that there was a surgery that could help her, their family was relieved and hopeful for her future.

Her parents told us, “The surgeon gave us hope and we are feeling much better after knowing our baby can have surgery.”

Dieulinda is a 2-month old baby girl with one older sibling. Her mother shared that the first 2 months of her life she was growing as their ...

Read more

Dieulinda's Timeline

  • October 8, 2021
    PROFILE SUBMITTED

    Dieulinda was submitted by Jennifer Rogers, Chief Nursing Officer at Project Medishare.

  • October 10, 2021
    TREATMENT OCCURRED

    Dieulinda received treatment at Hospital Bernard Mevs in Haiti. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • October 12, 2021
    PROFILE PUBLISHED

    Dieulinda's profile was published to start raising funds.

  • October 27, 2021
    FULLY FUNDED

    Dieulinda's treatment was fully funded.

  • November 22, 2021
    TREATMENT UPDATE

    Dieulinda's treatment was successful. Read the update.

Funded by 1 donor

Profile 48x48 589fbadd efcd 4457 b1c0 38cd87c88a22

Funded by 1 donor

Profile 48x48 589fbadd efcd 4457 b1c0 38cd87c88a22
Treatment
Hydrocephalus ETV
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $897 for Dieulinda's treatment
Hospital Fees
$357
Medical Staff
$100
Medication
$80
Supplies
$0
Labs
$10
Radiology
$350
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

Families usually notice this condition with their child as their head grows large. These children do not reach normal developmental milestones and become unable to hold their head up, sit on their own, or talk. Some children become very irritable and become unable to suck and swallow so getting enough nutrition becomes difficult.

​What is the impact on patients’ lives of living with these conditions?

Children living with hydrocephaly are living with some form of brain damage that progresses as they get older. This damage will prevent them from developing on a normal trajectory. They have trouble eating, being able to sit, stand and communicate. Often they develop seizures and often experience pain and irritability. If it remains untreated, this condition will lead to death.

What cultural or regional factors affect the treatment of these conditions?

There is a lot of fear and stigma toward these patients as their heads grow large. Families with children who have hydrocephalus have trouble finding caregivers and support because of this fear. Also it is a financial burden to care for these children because of medication for seizures and the extra care they require as they grow older.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The treatment process involves a surgery to stop the extra fluid in the brain from accumulating and putting pressure on the brain. This is done by making a hole in part of the brain to drain the liquid (ETV). The patient usually spends one or two nights in the hospital and then goes home with a tiny incision in their head and abdomen.

What is the impact of this treatment on the patient’s life?

This treatment is the only thing that will save the patient’s life. This treatment will prevent further brain damage. If it is caught early it allows the child to grow and develop fully. If it is caught late, the patient can receive therapy to assist them to overcome the developmental difficulties caused by the damage already done to their brain.

What potential side effects or risks come with this treatment?

The main complication caused by this surgery is simply that is does not work. In this case the child is given another surgery and a shunt is placed.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

There is only one hospital in the country that performs surgeries for children with hydrocephaly. This hospital is in Port au Prince, Haiti. Children that live in the North or South of the country have to travel very far for clinic visits and surgery. This requires spending all day or several days on public transport to reach the hospital.

What are the alternatives to this treatment?

There are no current alternatives this treatment. If the brain damage is too far advanced then palliative care to treat the child’s pain and support the family is the only other option.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.