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Success! Jamesly from Haiti raised $897 to fund brain surgery.

Jamesly
100%
  • $897 raised, $0 to go
$897
raised
$0
to go
Fully funded
Jamesly's treatment was fully funded on August 27, 2022.

Photo of Jamesly post-operation

September 6, 2022

Jamesly underwent brain surgery.

Jamesly had a successful surgery and will now be able to return to school and continue having a healthy life without complications from hydrocephalus. This is a big relief for his family and they have a lot of hopes for his future that can come true now.

Jamesly’s family is grateful they had the opportunity to have lifesaving surgery for their son and want to share a big thank you!

Jamesly had a successful surgery and will now be able to return to school and continue having a healthy life without complications from hydr...

Read more
May 12, 2022

Jamesly is an 11-year-old boy who lives with his parents and older brother in Haiti. He shared that he likes to play with his friends.

Jamesly has been diagnosed with hydrocephalus, a condition in which excess cerebrospinal fluid accumulates in the brain, increasing intracranial pressure. As a result of his condition, Jamesly has developed headaches, and he is unable to walk. Without treatment, Jamesly will experience severe physical and developmental delays.

Our medical partner, Project Medishare, is requesting $897 to cover the cost of surgery for Jamesly at Hospital Bernard Mevs. This is the only hospital in the country where Jamesly can receive the treatment that is critical to resolving his hydrocephalus. This life-changing surgery is scheduled for May 12th, and it should allow Jamesly to develop into a strong and healthy young man.

His family is hopeful the surgery will enable Jamesly to go back to school, and be able to play with his friends.

Jamesly is an 11-year-old boy who lives with his parents and older brother in Haiti. He shared that he likes to play with his friends. Ja...

Read more

Jamesly's Timeline

  • May 12, 2022
    PROFILE SUBMITTED

    Jamesly was submitted by Jennifer Rogers, Chief Nursing Officer at Project Medishare.

  • May 12, 2022
    TREATMENT OCCURRED

    Jamesly received treatment at Hospital Bernard Mevs in Haiti. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • May 16, 2022
    PROFILE PUBLISHED

    Jamesly's profile was published to start raising funds.

  • August 27, 2022
    FULLY FUNDED

    Jamesly's treatment was fully funded.

  • September 6, 2022
    TREATMENT UPDATE

    Jamesly's treatment was successful. Read the update.

Funded by 13 donors

Funded by 13 donors

Treatment
Hydrocephalus ETV
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $897 for Jamesly's treatment
Hospital Fees
$357
Medical Staff
$100
Medication
$80
Supplies
$0
Labs
$10
Radiology
$350
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

Families usually notice this condition with their child as their head grows large. These children do not reach normal developmental milestones and become unable to hold their head up, sit on their own, or talk. Some children become very irritable and become unable to suck and swallow so getting enough nutrition becomes difficult.

​What is the impact on patients’ lives of living with these conditions?

Children living with hydrocephaly are living with some form of brain damage that progresses as they get older. This damage will prevent them from developing on a normal trajectory. They have trouble eating, being able to sit, stand and communicate. Often they develop seizures and often experience pain and irritability. If it remains untreated, this condition will lead to death.

What cultural or regional factors affect the treatment of these conditions?

There is a lot of fear and stigma toward these patients as their heads grow large. Families with children who have hydrocephalus have trouble finding caregivers and support because of this fear. Also it is a financial burden to care for these children because of medication for seizures and the extra care they require as they grow older.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The treatment process involves a surgery to stop the extra fluid in the brain from accumulating and putting pressure on the brain. This is done by making a hole in part of the brain to drain the liquid (ETV). The patient usually spends one or two nights in the hospital and then goes home with a tiny incision in their head and abdomen.

What is the impact of this treatment on the patient’s life?

This treatment is the only thing that will save the patient’s life. This treatment will prevent further brain damage. If it is caught early it allows the child to grow and develop fully. If it is caught late, the patient can receive therapy to assist them to overcome the developmental difficulties caused by the damage already done to their brain.

What potential side effects or risks come with this treatment?

The main complication caused by this surgery is simply that is does not work. In this case the child is given another surgery and a shunt is placed.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

There is only one hospital in the country that performs surgeries for children with hydrocephaly. This hospital is in Port au Prince, Haiti. Children that live in the North or South of the country have to travel very far for clinic visits and surgery. This requires spending all day or several days on public transport to reach the hospital.

What are the alternatives to this treatment?

There are no current alternatives this treatment. If the brain damage is too far advanced then palliative care to treat the child’s pain and support the family is the only other option.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.