Chadier is a 5-year-old boy who lives with his grandmother, a small-scale farmer and the sole breadwinner for the family, in South Sudan. She shared that he was abandoned by his mother, who had separated from her husband before Chadier’s birth.
Chadier was born with a congenital malformation, where his bladder formed outside the body (bladder exstrophy). His mother took him to a hospital at the age of 6 months for treatment of his condition. She was advised to wait 4 years for his surgery.
The hospital that Chadier’s mother visited approached an organization that supports needy patients and shared his case to them. Chadier and his grandmother reside in a rural village, and it was difficult for the organization to locate them. The village has inaccessible roads, no schools, and frequent outbreaks of war. Fortunately, the organization was finally able to locate Chadier and his grandmother in December of last year.
He was referred to BethanyKids Hospital in Kenya for treatment after the organization coordinated with our medical partner African Mission Healthcare. Upon his arrival, Chadier was diagnosed and it was recommended that he undergo multiple surgeries to heal his condition. Chadier has underwent initial bladder exstrophy repair surgery. He still needs epispadias repair surgery to treat his condition. Chadier’s grandmother cannot afford to pay for his medical treatments, so their family needs help to raise the $834 cost.
Chadier’s grandma says, “I have always wished for him to get treated, and I’m happy that it has started and is going well.”