Three year old Sok Heng lives in Phnom Penh, Cambodia with her parents and 10 year-old brother. Currently, Sok Heng’s mother is unemployed, and her father is unable to work due to a recent illness. They live near extended family members who assist with caring for the children.
Sok Heng was born with a rare congenital condition called Morquio syndrome. In children with Morquio syndrome, the body cannot break down sugar chains called glycosaminoglycans that help build bone, cartilage, corneas, skin and connective tissues. As a result, these children suffer from loose joints and restricted mobility of their joints. For the last several months, Sok Heng been undergoing treatment, including splinting and physiotherapy of her right hand and wrist. Unfortunately, she is still experiencing pain and limited hand function.
On November 2nd, Hok Seng will undergo tenosynovectomy surgery with our medical partner at Kien Khleang National Rehabilitation Centre. This tendon and nerve procedure corrects restricted or painful movement of a tendon, due to thickening and adhesions within the tendon sheath. Our medical partner, Children’s Surgical Centre, is seeking $572 to fund Hok Seng’s surgery and post-operative care, including physiotherapy. After recovery, Sok Heng will have reduced pain and improved function in her hand.
Her mom shared: “I hope my daughter can move her hand again and not be in pain.”