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Success! Orens from Haiti raised $957 to fund brain surgery to treat hydrocephalus.

Orens
100%
  • $957 raised, $0 to go
$957
raised
$0
to go
Fully funded
Orens's treatment was fully funded on December 21, 2021.

Photo of Orens post-operation

December 27, 2021

Orens underwent brain surgery to treat hydrocephalus.

Orens had a successful treatment with our medical partner. His family is feeling hopeful that he will now be able to grow into a healthy child.

Orens’s mother shared that she is so grateful for all of the people that helped to give her child this surgery that he needed.

Orens had a successful treatment with our medical partner. His family is feeling hopeful that he will now be able to grow into a healthy chi...

Read more
November 29, 2021

Orens is an 11 month old baby boy from Haiti. Orens is loved and cared for by his mother and father who want to see him healthy.

Orens has been diagnosed with hydrocephalus, a condition in which excess cerebrospinal fluid accumulates in the brain and increases intracranial pressure. As a result of his condition, Orens has a larger head that was noticed by his family when was around 3 months old. Without treatment, Orens will experience severe physical and developmental delays.

Our medical partner, Project Medishare, is requesting $957 to cover the cost of surgery for Orens at Hospital Bernard Mevs that will treat his hydrocephalus. This is the only site in the country where this care is currently available and the procedure is scheduled to take place on November 30th. This critical treatment will place a shunt to drain the excess fluid from Orens’s brain to reduce intracranial pressure and greatly improve his quality of life. With proper treatment, Orens will hopefully develop into a strong, healthy young boy.

Orens mother shared that she has travelled a long way from her home with Orens. She is happy and relieved to finally have hope for her child.

Orens is an 11 month old baby boy from Haiti. Orens is loved and cared for by his mother and father who want to see him healthy. Orens ha...

Read more

Orens's Timeline

  • November 29, 2021
    PROFILE SUBMITTED

    Orens was submitted by Jennifer Rogers, Chief Nursing Officer at Project Medishare.

  • November 30, 2021
    PROFILE PUBLISHED

    Orens's profile was published to start raising funds.

  • December 8, 2021
    TREATMENT OCCURRED

    Orens received treatment at Hospital Bernard Mevs in Haiti. Medical partners often provide care to patients accepted by Watsi before those patients are fully funded, operating under the guarantee that the cost of care will be paid for by donors.

  • December 21, 2021
    FULLY FUNDED

    Orens's treatment was fully funded.

  • December 27, 2021
    TREATMENT UPDATE

    Orens's treatment was successful. Read the update.

Funded by 18 donors

Funded by 18 donors

Treatment
Hydrocephalus VPS
  • Cost Breakdown
  • Diagnosis
  • Procedure
On average, it costs $957 for Orens's treatment
Hospital Fees
$357
Medical Staff
$100
Medication
$80
Supplies
$60
Labs
$10
Radiology
$350
  • Symptoms
  • Impact on patient's life
  • Cultural or regional significance

​What kinds of symptoms do patients experience before receiving treatment?

Families usually notice this condition with their child as their head grows large. These children do not reach normal developmental milestones and become unable to hold their head up, sit on their own, or talk. Some children become very irritable and become unable to suck and swallow so getting enough nutrition becomes difficult.

​What is the impact on patients’ lives of living with these conditions?

Children living with hydrocephaly are living with some form of brain damage that progresses as they get older. This damage will prevent them from developing on a normal trajectory. They have trouble eating, being able to sit, stand and communicate. Often they develop seizures and often experience pain and irritability. If it remains untreated, this condition will lead to death.

What cultural or regional factors affect the treatment of these conditions?

There is a lot of fear and stigma toward these patients as their heads grow large. Families with children who have hydrocephalus have trouble finding caregivers and support because of this fear. Also it is a financial burden to care for these children because of medication for seizures and the extra care they require as they grow older.

  • Process
  • Impact on patient's life
  • Risks and side-effects
  • Accessibility
  • Alternatives

What does the treatment process look like?

The treatment process involves a surgery to stop the extra fluid in the brain from accumulating and putting pressure on the brain. This is done by putting a small tube in the brain that drains the fluid into the abdomen (VP shunt). The patient usually spends one or two nights in the hospital and then goes home with a tiny incision in their head and abdomen.

What is the impact of this treatment on the patient’s life?

This treatment is the only thing that will save the patient’s life. This treatment will prevent further brain damage. If it is caught early it allows the child to grow and develop fully. If it is caught late, the patient can receive therapy to assist them to overcome the developmental difficulties caused by the damage already done to their brain.

What potential side effects or risks come with this treatment?

In some children the shunt that drains the fluid into the abdomen can become blocked or infected. In these cases the shunt is removed, the infection is treated, and the shunt is replaced.

How accessible is treatment in the area? What is the typical journey like for a patient to receive care?

There is only one hospital in the country that performs surgeries for children with hydrocephaly. This hospital is in Port au Prince, Haiti. Children that live in the North or South of the country have to travel very far for clinic visits and surgery. This requires spending all day or several days on public transport to reach the hospital.

What are the alternatives to this treatment?

There are no current alternatives this treatment. If the brain damage is too far advanced then palliative care to treat the child’s pain and support the family is the only other option.

Meet another patient you can support

100% of your donation funds life-changing surgery.

Meet another patient you can support

100% of your donation funds life-changing surgery.